A/HRC/34/58 family rather than directly to the persons with disabilities, and the feminization of support. 19 It is important to note that allowances that are paid directly to “informal carers” of adults with disabilities can compromise the capacity of persons with disabilities to exercise choice and control over their support. Support to families should never replace support to individuals. 3. Participation and collaboration 63. Persons with disabilities and their representative organizations must participate in all decision-making processes related to the design, implementation, monitoring and evaluation of support services and arrangements. Persons with disabilities know best what type of support they require and the barriers they face in accessing it. The Convention on the Rights of Persons with Disabilities explicitly requires States to consult closely with and actively involve persons with disabilities, including children with disabilities, in the development and implementation of legislation and policies concerning issues relating to them (art. 4 (3)). The Special Rapporteur’s thematic study on the right of persons with disabilities to participate in decision-making (A/HRC/31/62) provides specific guidance in this regard. 64. States should promote collaboration and partnerships between public authorities and civil society organizations, including representative organizations of persons with disabilities, in the area of provision of support, particularly at the subnational and operational levels. In this way, support systems can benefit from the outreach capacity of organizations of persons with disabilities, their knowledge of local contexts and their mobilization and advocacy capacity. For instance, in Kenya the Government funds organizations of persons with psychosocial disabilities to run peer support groups in seven counties that facilitate support for decision-making and community living. 4. Non-discrimination 65. States must ensure that all persons with disabilities enjoy equal access to quality support without discrimination. Public and private service providers and agencies cannot deny access to support on the basis of disability, whether directly or indirectly, and they must ensure the provision of reasonable accommodation to all those who may require it. States should review all eligibility criteria and assessments from a human rights perspective to ensure they are not discriminatory, in line with the recommendations included in the Special Rapporteur’s thematic study on the right of persons with disabilities to social protection (A/70/297). 66. States must abolish discriminatory practices in the provision of support. For instance, many States continue to rely on institutional and residential care and provide support services predominantly in those settings. Furthermore, the existence of guardianship and other substitute decision-making regimes present great challenges for persons with disabilities in accessing support services. These practices not only deprive them of the possibility to choose their supports, but also contribute to perpetuating their isolation, forced treatment and institutionalization. States should not bundle access to support with such requirements as accepting certain residential arrangements or undergoing medical treatment. Stigma and discrimination also have a negative impact on access to support services by persons with disabilities. Misconceptions about them often result in 19 16 Evidence also shows that, if well designed, personalization schemes can increase the protection of those who provide support, both in the formal and informal sector. See Kirstein Rummery, “A comparative analysis of personalisation: balancing an ethic of care with user empowerment”, Ethics and Social Welfare, vol. 5, No. 2 (2011), pp. 138-152.

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