A/HRC/41/47
43.
The outbreak of cases in children and adolescents points to recent transmission, as
well as to the failure of the health-care system to control the disease. The number of new
cases of leprosy among children with visible physical impairments at the time of diagnosis
directly reflects late case detection, alongside the incapacity of the health-care system to
identify leprosy. However, such evidence should not be taken as a mere indicator of the
strength of the epidemic and should also support effective public health strategies capable
of ensuring access to the highest attainable standard of health among vulnerable
populations and groups.
44.
Diagnosis and treatment of leprosy in children require medical expertise, since both
demand adjustments to immature cognition, perception and bodies. This poses a significant
challenge in the global scenario of decline in medical expertise to diagnose and treat
leprosy. 28 Techniques normally used to diagnose leprosy are not fit for children as they
require cooperation from the children, and some may even be experienced as violence.
45.
Such difficulties and barriers are surely a contributing factor for underdetection and
late diagnosis, but they are also a result of the diminished public apprehension of leprosy
that followed the global elimination of leprosy as a public health problem (defined as a
registered prevalence of less than 1 case for every 10,000 persons) in 2000. 29 This situation
has been generally misunderstood as eradication, when in fact such a scenario is unlikely in
the future.
46.
Treatment dropout rates in children range from 10 to 20 per cent in some
programmes, the main cause being the child’s refusal to cooperate in swallowing tablets
and the long duration of the treatment, which can be physically challenging and painful.
Child-friendly treatment options like flavoured syrups would provide greater quality to the
care of children with leprosy and would also help in securing adherence to the treatment.
However, no such paediatric formulations are on the horizon, given the overall lack of
funds for leprosy.30 Such lack of biomedical technologies that can provide better care is
grounded in the mercantilization of health.
47.
Children are not only more vulnerable to leprosy, but also to the harmful stereotypes
that still frame many of the local explanatory models about the disease and that also support
stigmatization at the community level, as well as institutionalized, structural and
interpersonal discrimination. However, lack of comprehensive data on how harmful
stereotypes and traditional practices impact the well-being of affected children is a major
void in leprosy research. There is also scarce knowledge on the impact of discrimination on
the grounds of leprosy against children of persons affected by leprosy.
IV. How discrimination harms women and children
A.
Assessing discrimination from below
48.
Discrimination on any grounds can be fully understood only if the
phenomenological dimension enacted in the daily lives of its victims is properly
acknowledged. Such phenomenological dimension allows for uncovering epistemological
possibilities that cannot be grasped or generated by representations produced by dominant
groups.31
49.
In order to assess discrimination from below, the Special Rapporteur strived at
giving voice to people living in extreme vulnerable conditions and who are, in consequence,
28
29
30
31
N. Mistry and others, “Childhood leprosy revisited”, Pediatric Oncall Journal, vol. 13, No. 4
(October–December 2016), pp. 83–92.
Ibid.
Ibid.
S. Harding, “Rethinking standpoint epistemology: what is ‘strong objectivity’?”, in The Feminist
Standpoint Theory Reader: Intellectual and Political Controversies (New York, Routledge, 2002);
and D.J. Haraway, “Situated knowledges: the science question in feminism and the privilege of partial
perspective”, Feminist Studies, vol. 14, No. 3 (Autumn 1988), pp. 575–599.
9
Select target paragraph3
Connect to a paragraph
Connect to an entity
Disable highlights
Add to table of contents