A/HRC/28/75
entrenched misconceptions and misunderstanding about albinism, notably perpetuated by
the media and popular culture, which consistently portray persons with albinism in a
negative light.34 Given the rarity of albinism in those regions (an estimated 1 in 17,000 to
20,000) the media and popular culture are major sources of information on the condition for
the majority. Therefore, unless specific albinism awareness-raising is conducted by support
groups and civil society, such discrimination is unlikely to be brought to light.
41.
Persons with albinism face more severe forms of discrimination and violence in
those regions where the majority of the general population are relatively dark-skinned. The
degree of contrast in pigmentation between the majority and the person with albinism in a
community tends to correlate positively with the severity and intensity of discrimination
faced by persons with albinism. In other words, a greater degree of contrast in pigmentation
often gives rise to a greater degree of discrimination. That appears to be the case in some
sub-Saharan African countries where albinism is shrouded in myth and dangerous and
erroneous beliefs.
42.
Little information is available from other regions such as Asia, South America and
the Pacific etc. However, some reports indicate that in China and other Asian countries,
children with albinism face abandonment and rejection by their families. A recent
epidemiological study of persons with albinism from a specific tribe in Pakistan explains
the multi-layered human rights problems faced by persons with albinism, including lack of
understanding of albinism, social rejection, medical and psychological problems, as well as
confinement to poverty. 35 Reliable testimonies received from Mumbai, India, also indicate
that persons with albinism tend to be viewed as cursed on account of their appearance. That
perceived curse is considered contagious by some, such that persons with albinism are
effectively ostracized and isolated from and by mainstream society. Such isolation has been
reported to occur even when persons with albinism are moved into special schools such as
schools for the blind owing to their visual impairment. Such treatment even within the
community of persons with disabilities shows the pervasiveness of discrimination against
persons with albinism.
43.
Given the fact that evidence such as the above has only come to the fore in the last
year, the absence of information on other regions should not be interpreted to mean that
there is no problem of discrimination, stigmatization and violence in those regions. Rather,
there should be a general presumption that there are human rights issues facing persons
with albinism in each region. That presumption can be rebutted by targeted studies in the
near future. Lack of sufficient knowledge remains a significant barrier to tackling
discrimination, stigma and violence.
III. Responses: successes and subsisting challenges
A.
Advocacy
44.
The documented reports of ritual killings of, and attacks against, persons with
albinism, and the many more undocumented acts of violence and discrimination they face,
34
35
Personas con Albinismo (ALBA), Spain, see www.albinismo.es.
In popular culture, particularly in literature and in film, persons with albinism are portrayed as
villains, demons, ghosts, freaks of nature, mystical anomalies or village idiots.
See Azam Jah Samdani and Bahram Khan Khoso, “A unique albino village of Bhatti Tribe in rural
Sindh, Pakistan, with oculocutaneous albinism manifestations: an epidemiological study, Iranian
Journal of Dermatology, (Iranian Society of Dermatology, 2009), pp. 42–46. See also “Feature:
Nepal’s albinos caught between reality and myth”, (Shanghai Daily.com, 9 October 2014).
11
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