A/HRC/37/57
children with albinism develop blindness is widespread across the medical and educational
sectors and is resulting in children being taught Braille when they do not require it. In some
countries those with albinism are registered as “legally blind” or “blind”, although this does
not mean they have no vision.37
Right to work
46.
The overall health situation of persons with albinism described above, along with
discrimination and stigmatization, represent a barrier to favourable conditions of work, in
particular regarding safe and healthy working conditions. 38 For instance, in a study on
members of the Tonga community with albinism living in a remote area of Zimbabwe, it
was highlighted that sensitive skin and photophobia prohibited them from participating in
agricultural and fishing activities and that very few other opportunities for work existed.39
47.
Furthermore, the appearance of skin cancer lesions on persons with albinism, often
confused with albinism itself due to the lack of awareness, leads to even more
stigmatization and exposes persons with albinism to further discrimination, particularly
when seeking employment. 40 In Pakistan, many persons with albinism “referred to their
cosmetic disability as one of the reasons for their joblessness”. 41 Similarly, in Nigeria,
“social discrimination, often associated with albinism, constitutes a major obstacle to
building of social relationships and finding/maintaining an occupation among persons with
albinism”. 42 Reported examples of discrimination and stigmatization in India include
refusing to provide work placements and having to sign a declaration to release a college
from its duty to provide placements to students. 43 Similarly, in Spain, it was reported that
persons with albinism had been discriminated against based on their physical appearance, in
particular in employment that required direct contact with clients. Potential employers
considered that their appearance could have a negative impact on their business. 44
Women and girls’ rights
48.
As pointed out above, women and children, in particular girls, suffer multiple
discrimination owing to targeted rape by persons with HIV/AIDS. Consequently, survivors
of sexual violence can experience increased health complications, such as post-traumatic
stress disorder, pregnancy and sexually transmitted infections. 45
C.
Psychosocial impact and mental health
49.
Mental health has been identified by persons with albinism as one of their major
health issues. 46 The issue is global, as the psychological and mental impact of
stigmatization is reported worldwide. The need for psychological and rehabilitative support
should not be underestimated; not only for those that have survived attacks and mutilation,
but also for all persons with albinism who experience fear, bullying, stigmatization, lack of
37
38
39
40
41
42
43
44
45
46
P. Lynch, P. Lund and B. Massah, “Identifying strategies to enhance the educational inclusion of
visually impaired children with albinism in Malawi”, International Journal of Educational
Development, vol. 39 (2014), pp. 216–224.
International Covenant on Economic, Social and Cultural Rights, art. 7 (b).
Patricia M. Lund and others, “Oculocutaneous albinism in an isolated Tonga community in
Zimbabwe”, Journal of Medical Genetics, vol. 34, No. 9 (1997), pp. 733–735.
See A/HRC/31/63, para. 39.
Azam Jah Samdani and Bahram Khan Khoso, “A unique albino village of Bhatti tribe in rural Sindh,
Pakistan, with oculocutaneous albinism manifestations: an epidemiological study”.
N.N. Udeh and others, “Oculocutaneous albinism: identifying and overcoming barriers to vision care
in a Nigerian population”, p. 512.
Information from persons with albinism.
Asociación de Ayuda a Personas con Albinismo, Spain.
Under the Same Sun, “Kenyans with albinism and racial discrimination”, 2017.
Information received from persons with albinism.
11
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