A/HRC/38/42
B.
Mandate
62.
The Council decided to appoint the Special Rapporteur for a period of three years
with the following mandate:
(a)
To follow up and report on progress made and measures taken by States for
the effective implementation of the principles and guidelines for the elimination of
discrimination against persons affected by leprosy and their family members for the
realization of the enjoyment of human rights by persons affected by leprosy and their
family members in all regions of the world, and to make recommendations to the Council in
this regard;
(b) To engage in dialogue and consult with States and other relevant stakeholders,
including United Nations bodies, specialized agencies, funds and programmes, in particular
WHO, other intergovernmental, regional human rights mechanisms, national human rights
institutions and non-governmental organizations to identify, exchange and promote good
practices relating to the realization of the rights of persons affected by leprosy and their
family members, and to their participation as equal members of society with a view to
achieving a leprosy-free world;
(c)
To raise awareness of the rights of persons affected by leprosy and their
family members and to combat stigmas, prejudices and harmful traditional practices and
beliefs that hinder their enjoyment of human rights and fundamental freedoms and their
participation in society on an equal basis with others;
(d)
To report annually to the Council, starting from its thirty-eighth session.
63.
The Special Rapporteur commends the establishment of the mandate as an important
milestone in addressing the marginalized and mostly forgotten segment of population that
experience multiple discrimination and violation. As a new mandate within the Council, the
Special Rapporteur will identify key areas in which she can effectively contribute to the
advancement of the rights of persons affected by leprosy and their family members. For the
effective implementation of the duties and responsibilities assigned to the mandate, the
Special Rapporteur should rely on the support of the States, partners and other stakeholders,
especially civil society and organizations of persons affected by leprosy.
C.
Vision
Intersectionality and affirmative action
64.
Leprosy-related discrimination is multiple and multilayered and there is sufficient
evidence to suggest that leprosy commonly intersects with other identity labels subjected to
oppression, marginalization, exclusion and violence. Among the more frequent social
conditions and identities that intersect with leprosy are: gender; ethnicity and/or race; age;
disability; migration; and poverty.
65.
In fact, intersectionality is key to an in-depth understanding of leprosy-related
discrimination. Intersectionality as a concept came from feminist theory and politics. Its
origin came from the need to understand the discrimination of black women through an
analysis that simultaneously encompassed gender and race. Intersectionality is not an
additive approach. Accordingly, different categories do not accumulate, but interrelate in
dynamic ways that always have a particular system of domination as a background. 48 This
means that intersectionality stands for the numerous effects that result from the intersection
of distinct differential axes in specific historical contexts. It also states that different
dimensions of social life cannot be artificially separated into pure phenomena. 49 In practice,
48
49
Patricia Hill Collins, Black Feminist Thought: Knowledge, Consciousness, and the Politics of
Empowerment (Boston, Unwin Hyman, 1990).
Avtar Brah and Ann Phoenix, “Ain’t I a woman? Revisiting intersectionality”, Journal of
International Women’s Studies, vol. 5, No. 3 (2004), pp. 75–86.
13
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