A/HRC/35/38
relevant United Nations bodies, specialized agencies, funds and programmes, other
intergovernmental organizations and national human rights institutions to give due
consideration to them in the formulation and implementation of policies and measures
concerning persons affected by leprosy and their family members. The Assembly also
encouraged all relevant actors in society, including hospitals, schools, universities, religious
groups and organizations, business enterprises, newspapers, broadcasting networks and
NGOs, to give due consideration, as appropriate, to the principles and guidelines in the
course of their activities.
9.
In response to the Human Rights Council’s request in resolution 29/5, the Advisory
Committee, at its fifteenth session in August 2015, established a drafting group composed
of eight experts: Laurence Boisson de Chazournes, Laura-Maria Crăciunean-Tatu, Mario
Luis Coriolano, Kaoru Obata, Ahmer Bilal Soofi, Yishan Zhang, Changrok Soh and Imeru
Tamrat Yigezu. Xinsheng Liu and Obiora Chinedu Okafor joined the drafting group
subsequently. The Chair of the group was Mr. Obata and the Rapporteur was Mr. Yigezu. 4
The Advisory Committee requested the drafting group to submit a preliminary report to it at
its sixteenth session, taking into account the replies to the questionnaire that had been sent
to States, national human rights institutions, international organizations, United Nations
agencies, relevant treaty bodies and special procedures as well as international and national
NGOs.
10.
The Advisory Committee took note of the drafting group’s preliminary report at its
sixteenth session in February 2016, and requested the drafting group to recirculate the
questionnaire to stakeholders who had not responded, in order to allow for more informed
work. It stated that additional replies from States and national human rights institutions
were especially welcome. The Advisory Committee also requested the drafting group to
submit a progress report to it at its seventeenth session.
11.
At its seventeenth session, the Advisory Committee took note of the progress report
submitted by the drafting group and requested it to submit the draft final report at its
eighteenth session, with a view to submitting the final report to the Human Rights Council
at its thirty-fifth session.
12.
A total of 57 responses to the questionnaire were received from 12 States, 9 national
human rights institutions, 1 international organization and 35 international and national
NGOs. 5 No responses were received from special procedures and treaty bodies. The
4
5
The drafting group would like to thank Nathaniel Melaku, Faculty of Law, Addis Ababa University,
Ethiopia, Izevbuwa Ikhimiukor, Osgoode Law School, York University, Toronto, Canada, and Yozo
Yokota, Director, Center for Human Rights Affairs, Japan, for their valuable research input to the
study. It also thanks the Nippon Foundation for facilitating the gathering of crucial information and its
continued support during the preparation of the report; the International Federation of Anti-Leprosy
Associations for facilitating responses from national associations of persons affected by leprosy and
for providing inputs to the study; and, in particular, Yohei Saskawa, Chair of the Nippon Foundation
and WHO Goodwill Ambassador for the elimination of leprosy and ending stigma and discrimination
against persons affected by leprosy who, from the outset, initiated action on the issue within the
international human rights mechanisms.
Responses were received from Bahrain, Brazil, Chile, El Salvador, Estonia, Japan, Montenegro,
Qatar, Saudi Arabia, Thailand, the United States of America and Viet Nam; the national human rights
institutions of Algeria, Denmark, Egypt, India, Montenegro, Rwanda, Serbia, the United Republic of
Tanzania and Venezuela (Bolivarian Republic of); as well as World Health Organization, Nippon
Foundation, Sasakawa Memorial Health Foundation, International Association for Integration,
Dignity and Economic Advancement (IDEA), IDEA-India, The Leprosy Mission InternationalBangladesh, The Leprosy Mission-Netherlands, Netherlands Leprosy Relief-Brazil, Movement for the
Reintegration of Persons Affected by Hansen’s Disease (MORHAN) (Brazil), Social Corporation for
the Rehabilitation of Persons Affected by Hansen’s Disease and their Family (CORSOHANSEN)
(Colombia), Federation of Associations of Persons Affected by Hansen’s Disease (FELAHANSEN)
(Colombia), Ethiopian National Association of Persons Affected by Leprosy (ENAPAL) (Ethiopia),
Fondation Kalipa pour le développement (FOKAD) (Democratic Republic of the Congo), Gerakan
Peduli Disabilities and Lepra Indonesis (GPDL) (Indonesia), FAIRMED Foundation (Sri Lanka),
Zen-Ryo-Kyo National Hansen’s Disease Sanatoria Residents’ Association (Japan), HANDA
Rehabilitation and Welfare Association (China), The Leprosy Mission-Myanmar, Fontilles-India,
Lepra-Bangladesh, Fontilles-Nicaragua, The Leprosy Mission-Niger, The Leprosy Mission-Nepal,
Lepra Society-India, International Federation of Anti-Leprosy Associations (ILEP) (India),
3
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