A/HRC/44/46/Add.2
(d)
Ensure that sufficient public resources are mobilized, allocated and
effectively utilized to fully implement approved legislation, policies and programmes
at the national and subnational levels of the State. Guarantee sufficient resources to
sustain expertise on Hansen’s disease in the country and to ensure high quality
research and teaching on Hansen’s disease at universities. Improve monitoring
systems for Hansen’s disease, comprising data disaggregated by socioeconomic and
demographic situation to support anti-discrimination policies and protection of
specific groups that are more vulnerable to discrimination related to Hansen’s disease.
Protection of specific groups
80.
The Special Rapporteur recommends that the Government:
(a)
Actively include, through special measures if necessary, women, children
and older persons affected by Hansen’s disease, and persons affected by disabilities
related to Hansen’s disease in existing policies and programmes aimed at protecting
women, children, older persons and persons with disabilities;
(b)
Foster empowerment, vocational and human rights training, and ensure
freedom from want and violence for women affected by Hansen’s disease;
(c)
Ensure the rights of children affected by Hansen’s disease to survival
and development, and ensure social protection for their families, guaranteeing that
counselling and psychoeducational methods are available at health services,
reasonable accommodation is available at schools, and that both services cooperate to
protect children’s rights;
(d)
Regulate article 4 of Law No. 11520, ensuring effective access to assistive
devices, support and reconstructive surgery. Take measures to reduce the burden of
disability-related costs on persons affected by Hansen’s disease and ensure
accessibility, reasonable accommodation, support, disability-inclusive social
protection, and functional access to information as key disability rights. Provide
community-based support services to older persons affected by disabilities related to
Hansen’s disease;
(e)
Use former Hansen’s disease colonies as privileged sites for
implementing memorialization processes and historical preservation. Guarantee that
residents enjoy property and health rights, and access to basic infrastructure and
services;
(f)
Provide for urgent symbolic and material reparation at the national level
to individuals who as children were separated from their parents affected by Hansen’s
disease and segregated from society.
International cooperation
81.
The Special Rapporteur recommends that the Government provide resources
to register good and best practices from both the public and the private sectors in
fighting discrimination, ensuring the full and meaningful inclusion of persons affected
by Hansen’s disease and their family members. The aim is to streamline and
implement a rights-based approach in the country, and to promote it at the
international level in the spirit of Sustainable Development Goal 17, within SouthSouth relations and the Community of Portuguese-speaking Countries.
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