A/HRC/26/46
G.
Long-term care
41.
The Chairperson Rapporteur of the 2014 Social Forum, who served as moderator of
the panel on long-term care, introduced the discussion with a presentation of the Argentine
long-term care model. She discussed the difficulties of providing long-term care for older
persons, noting that the care burden often fell largely upon women. She emphasized the
importance of social pensions and universal public health care, which could reduce that
burden. In Argentina, efforts had been made to move the care burden to the public sphere
by providing unemployed persons with the necessary training to be caretakers. That
addressed employment issues and allowed many older persons to remain in their homes.
For those who could no longer live on their own, efforts had been made to develop
appropriate care institutions. There, the informed consent of the person was critical, as was
the proper monitoring, maintenance and care of the facility and its charges. Efforts had to
be made to ensure that all older persons could age with dignity and, to the fullest extent
possible, depending on their circumstances, with autonomy.
42.
Erica Dhar, Senior Advisor for the AARP Office of International Affairs, discussed
the analysis by AARP of the costs of caregiving for older persons in the United States. The
study found that there were over 42 million family caregivers in the United States, whose
paid work had been reduced, as a result of their obligations, by an average of 41 per cent,
making their unpaid contributions worth around US$450 billion. Ms. Dhar noted that, with
the population continuing to age, the unpaid care burden would rise. She cited the need to
improve upon the Affordable Care Act and recent efforts in a number of states to further
improve the social welfare system for long-term care and reduce the burden of unpaid carework. In order to finance long-term care and to ensure its adequacy, AARP advocated for,
inter alia, improved affordability and access, choice of setting and provider, quality of life
and quality of care, support for family caregivers, and effective transitions and organization
of care.
43.
Claudia Mahler, a senior researcher at the German Institute for Human Rights,
discussed long-term care in Germany from a human rights perspective. Inhumane
conditions had been prevalent in private homes, including lack of autonomy for older
persons and instances of caregivers working daily 12-hour shifts. In 2001, the Committee
on Economic, Social and Cultural Rights had expressed serious concern over those
conditions and recommended urgent measures for improvement. The Institute had focused
on those issues and produced a study in 2006 on the social human rights of older persons.
Despite that, significant problems still persisted in the care of older persons, both in family
care and in institutions. That was particularly true in the case of older persons with
dementia. Ms. Mahler called for further public debate to promote a rights-based approach to
long-term care that would permit all older persons a life of human dignity.
44.
Maude Luherne, Policy and Project Officer at AGE Platform Europe, presented
AGE Platform’s efforts to promote a rights-based approach to long-term care for older
persons, including the European Charter of the rights and responsibilities of older people
requiring assistance and long-term care. AGE Platform was a network of over 160
organizations representing more than 30 million older persons. It supported a holistic
approach to the health of older persons that encompassed prevention, rehabilitation and
enablement, cure and care, including end-of-life care. In the European Union, approaches to
long-term care were highly variable between countries but common problems related to
inadequate coordination of health and social care, financial pressure, lack of support for
family care-givers, quality of care and elder abuse. AGE Platform, in its European Quality
Framework for long-term care services, called for a common analysis and vision to address
those issues, increased participation by older persons in identifying needs and solutions,
better coordination and exchange of information in order to improve long-term care
systems in Europe and older persons’ quality of life, and a rights-based approach to long-
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