A/HRC/41/47 participation of women, children and men affected by leprosy-related impairments and disabilities;40 (d) Establish reparation measures for persons affected by leprosy, as well as for their children when appropriate, who were forcibly segregated by State policies, in order to address the continuous nature of the violation; (e) Eliminate the iatrogenic stigma generated by prophylactic State segregation, with dissemination of accurate information on leprosy and preservation of its history; (f) Develop awareness-raising programmes at both the national and subnational levels, with a focus on providing accurate information about leprosy to the general population as well as on the human rights of persons affected by leprosy. Such programmes should provide for dialogue with all relevant population groups (including those possessing non-scientific knowledge and non-official authorities); involve persons affected by leprosy; and be sensitive to local languages, gender, age and disability; (g) Improve monitoring systems for leprosy, comprising disaggregated and equality data that may support anti-discriminatory policies. Leprosy health services should include easy-to-access mechanisms for making complaints of discrimination; (h) Implement multisectoral governance, and affirmative measures when necessary, in order to tackle the multiple nature of leprosy-related discrimination and vulnerability. Multisectorality should also be reflected in leprosy health services, guaranteeing accessibility, comprehensive care and peer counselling. 2. Recommendations for enforcing the human rights of women affected by leprosy 93. The Special Rapporteur recommends that States, national human rights institutions and civil society organizations take all necessary measures to: (a) Ensure that human rights monitoring of gender-based discrimination and violence includes the particular situation of women affected by leprosy. Leprosy monitoring systems and public health strategies should also make use of a gender framework that ensures autonomous, affordable and effective comprehensive care (A/HRC/32/44). Primary care, especially in high-burden areas, should include female health workers. Leprosy services should provide training on self-care techniques and peer counselling; (b) Include women affected by leprosy in national plans for gender equality, gender violence prevention and women’s access to justice and raise awareness on gender equality in leprosy services, high-burden communities and priority groups; (c) Empower women affected by leprosy to know their rights and how to claim them, including through income-generation programmes, creation of cooperatives and continued education, in order to secure for them economic independence and access to dignified work, which should guarantee reasonable accommodation; (d) Establish affirmative measures for ensuring equality of participation of women affected by leprosy in any decision-making that affects their lives, as well as in the mechanisms of representative and participatory democracy, non-governmental organizations, epistemic communities and health services. 3. Recommendations for enforcing the human rights of children affected by leprosy 94. The Special Rapporteur recommends that States, national human rights institutions and civil society organizations take all necessary measures to: 40 18 In line with general comment No. 7 (2018) on the participation of persons with disabilities, including children with disabilities, through their representative organizations, in the implementation of the Convention of the Committee on the Rights of Persons with Disabilities.

Select target paragraph3

Connect to a paragraph
Connect to an entity
Disable highlights
Add to table of contents