A/HRC/28/75
(a)
Limited knowledge of the issue and its impact on the enjoyment of human
rights by persons with albinism;
(b)
Limited knowledge and capacity of associations of persons with albinism
around the world to engage with human rights mechanisms;
(c)
Little information, scarce data and incomplete reports on cases of
discrimination on specific grounds;
(d)
Scarcity of reliable data on cases of killings of and attacks43 against persons
with albinism in countries other than Burundi, Côte d’Ivoire or Tanzania, where there is a
higher prevalence of albinism, but also a more active and better skilled civil society. The
lack of information makes it difficult for potentially relevant special procedures mandateholders to give attention to the issue within their respective mandates, including the Special
Rapporteurs on torture and other cruel, inhuman or degrading treatment or punishment, on
racism and related intolerance, education, disability, health, violence against women and
violence against children. Similarly, the secrecy surrounding witchcraft and the
underground nature of the market associated with the trafficking of persons and organs
make it difficult to find evidence relevant to the mandates of the Special Rapporteur on the
sale of children and the Special Rapporteur on trafficking in persons;
(e)
Further, the scope of certain special procedures mandates prevents the
mandate-holders from addressing the issue. For example, persons with albinism do not fall
under the internationally accepted definition of minorities, which is limited to national,
ethnic, religious or linguistic minorities,44 and do not fall therefore within the scope of the
mandate of the Special Rapporteur on minority issues. While the definition of “minority” is
currently under review, it is unclear at this point whether the new definition will
accommodate persons with albinism;
(f)
Human rights challenges associated with albinism are multi-layered and are
not currently being addressed in a comprehensive and sustainable manner by any human
rights mechanism. In addition to the fact that they do not fall within the scope of the current
definition of minorities, persons with albinism often suffer from poor eyesight and are
prone to developing skin cancer, but cannot or would not want to be classified as persons
with disabilities, as that would mean adding another layer of labelling and discrimination to
which they may be subjected. They are attacked and tortured, and their body parts and
organs are trafficked and sold owing to the myths and misconceptions surrounding
albinism. Yet the protection afforded to persons with albinism by international human
rights treaties does not cater for their special needs or the complexities they face, while
existing special procedures can only partly address the situation of persons with albinism
from a particular and limited angle to the extent that the scope of their mandates allows.
IV. Findings and recommendations
60.
Persons with albinism have special needs. In addition to issues pertaining to the
rights to life and security of person, it is necessary to address their special needs in terms of
education due to their poor eyesight as well as their special health needs, particularly in the
area of skin cancer prevention. The situation of human rights of persons with albinism
should therefore be addressed in a holistic manner.
43
44
It should be noted that ritual killings and attacks remain undocumented and unreported, owing to the
code of silence surrounding such crimes and the vulnerability of the targeted population.
See United Nations Declaration on the Rights of Persons Belonging to National or Ethnic, Religious
and Linguistic Minorities, adopted by General Assembly resolution 47/135 of 18 December 1992.
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