A/HRC/37/57
(g)
Facilitate the importation of glasses and gadgets as a measure of
reasonable accommodation, for example, by removing taxes and administrative costs
associated with the importation of these goods.
100. With regard to exogenous conditions affecting the enjoyment of the right to the
highest standard of physical and mental health, the Independent Expert reiterates her
previous recommendations that member States, particularly those in which there are
records of attacks:
(a)
Conduct in-depth research on the root causes of attacks against persons
with albinism, including on harmful practices related to witchcraft;
(b)
Develop and implement long-lasting awareness-raising campaigns, as
they are critical in addressing the harmful practices and rampant myths affecting the
enjoyment of human rights by persons with albinism;
(c)
Review and adapt legal frameworks, as needed, to ensure that they
encompass all aspects of the attacks against persons with albinism, including with
regard to the trafficking of body parts;
(d)
Regulate the practice of traditional medicine, including through
mechanisms such as Government-led licensing and monitoring regimes in both urban
and rural areas, and establish adequate standards for traditional medicine;
(e)
Ensure that social services are accessible to persons with albinism
without discrimination and with reasonable accommodation, in particular in a
manner that does not subject them to further stigmatization or require them to be
exposed to the sun in order to receive support from social services;
(f)
Cooperate with civil society organizations that provide support to
persons with albinism and their families.
101. The Independent Expert recommends that civil society and Governments
should, in the course of their work and in collaboration:
(a)
Continue to conduct quality research to shape public policy and
effectively implement sun protection strategies;
(b)
Support prevalence and epidemiological studies as a basis for developing
effective measures;
(c)
Publish data acquired in the course of their work to inform collaborative
work and develop policies and adequate measures;
(d)
Continue to raise awareness to:
(i)
Include specific information on albinism and, in particular, susceptibility
to skin cancer in training for health professionals;
(ii)
Ensure that there is no barrier to the recognition of persons with
albinism as persons with disability;
(iii) Use international albinism awareness day as an opportunity to inform
the general public about albinism and, whenever appropriate, engage in media
campaigns to this effect.
102. The Independent Expert recommends that the World Health Organization, in
response to recommendations made in the epidemiological study on albinism, pursue
or facilitate government action to ensure that albinism is taken up as a public health
concern, particularly where there are attacks and/or where there has been historical
neglect to the detriment of the enjoyment of human rights by persons with albinism.
103. The Independent Expert recommends that the international community,
including international organizations:
(a)
Support efforts for the realization of the right to health of persons with
albinism, such as the scaling-up of best practices identified in the present report, and
by ensuring its insertion into existing health projects;
21
Select target paragraph3
Connect to a paragraph
Connect to an entity
Disable highlights
Add to table of contents