A/HRC/38/42
often causes severe depression, resulting in a high incidence of self-isolation and selfexclusion, as well as mental illness.46
56.
Not only are persons affected by leprosy stigmatized and discriminated against, their
families are equally affected by courtesy stigma. Even though courtesy stigma may also
affect caregivers,47 it is the family members of persons affected by leprosy that bear the
brunt of the worst of discrimination. In many social and cultural contexts, entire families
are discriminated against and stigmatization and discrimination may have an impact for two
or even three generations.
IV. Structuring the mandate
A.
Background
57.
In 2010, the General Assembly, in a landmark move, adopted resolution 65/215 and
took note of the principles and guidelines on the elimination of discrimination against
persons affected by leprosy and their family members. In so doing, it established leprosy as
a human rights issue and stressed that persons affected by leprosy and their family members
should be treated as individuals with dignity and entitled to all human rights and
fundamental freedoms under customary international law, the relevant conventions and
national constitutions and laws.
58.
The resolution and the principles and guidelines were preceded by resolutions 8/13
and 12/7 of the Human Rights Council, from which a report and a draft set of principles and
guidelines resulted. In resolution 15/10, the Council took note with appreciation of the set
of principles and guidelines and invited the General Assembly to consider, as appropriate,
the issue of the elimination of discrimination against persons affected by leprosy and their
family members, including possible ways to promote further the principles and guidelines.
59.
In June 2015, the Council adopted resolution 29/5, mandating the Advisory
Committee to undertake a study to review the implementation of the principles and
guidelines and to submit a report containing practical recommendations for the wider
dissemination and more effective implementation of the principles and guidelines.
60.
While the progress report had failed to properly assess the implementation of the
principles and guidelines in endemic States, it recommended, however, the establishment of
a follow-up mechanism within the United Nations system to monitor and report on progress,
and to encourage States and other relevant actors to bring their conduct into line with what
was provided in the principles and guidelines.
61.
In June 2017, the Council adopted resolution 35/9, establishing the mandate of the
Special Rapporteur on the elimination of discrimination against persons affected by leprosy
and their family members. It called on States and all relevant stakeholders to cooperate with
the Special Rapporteur in the discharge of the mandate. It also requested the SecretaryGeneral and the United Nations High Commissioner for Human Rights to provide the
means for the effective fulfilment of the mandate. Finally, it encouraged the High
Commissioner and the Special Rapporteur, in collaboration with States and the relevant
international organizations, as well as non-governmental organizations, to organize
seminars on leprosy-related discrimination in order to widely disseminate the principles and
guidelines, also ensuring substantial participation of persons affected by leprosy.
46
47
12
See https://www.ilepfederation.org/news-item/why-we-must-talk-about-leprosy-stigma-and-mentalhealth/.
M. Dako-Gyeke, “Courtesy stigma: a concealed consternation among caregivers of people affected by
leprosy”, Social Science and Medicine (January 2018), pp. 190–196.
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