A/HRC/31/63
international norms into national legislation, policies, programmes and practices that are
effective and adapted to national circumstances.
D.
1.
Increase awareness and understanding of the condition of persons
with albinism
Awareness-raising
61.
In line with her mandate, the Independent Expert will raise awareness on the rights
of persons with albinism in order to combat stereotypes, prejudices and harmful traditional
practices and beliefs that hinder their enjoyment of human rights and participation in society
on an equal basis with others. To that end, she will promote positive change in social
perceptions about persons with albinism through the dissemination of general knowledge
about and understanding of albinism in society at large, including from a scientific
perspective. Such awareness-raising will contribute to fighting myths and stereotypes about
persons with albinism, particularly those that fuel stigma, discrimination and attacks.
62.
Recognizing the limited capacity of most civil society groups representing persons
with albinism, the Independent Expert wishes to work with them in order to increase their
knowledge of national and international avenues for addressing the obstacles faced by
persons with albinism in fully enjoying their human rights.
2.
Research and data collection
63.
Statistics and disaggregated data on albinism remain difficult to find, particularly in
areas were the worst human rights violations against persons with albinism occur. In order
to move towards policy changes, data collection, both qualitative and quantitative, and
comparative analyses are fundamental in order to fully understand the current situation of
persons with albinism.
64.
In addition, the difficulty in accessing reliable data on cases of killings of and
attacks against persons with albinism also hinders efforts to fight those horrendous human
rights violations. Such data should include information on the number of cases registered,
investigations, prosecutions and administrative and judicial decisions.
65.
Similarly, understanding the root causes of attacks against persons with albinism is
necessary in order to design strategies to address discrimination and attacks and to identify
adequate prevention measures. The secrecy surrounding witchcraft practices and the
underground nature of the market associated with the trafficking in body parts of persons
with albinism make it difficult to find evidence. Understanding the phenomena and their
implications would therefore be one of the priorities of the Independent Expert.
VI. Conclusions
66.
The Independent Expert views the creation of the mandate as a significant
expression of the collective will to end attacks against persons with albinism and to
find their root causes in order to establish measures to prevent the occurrence of
attacks. As stated by the United Nations High Commissioner for Human Rights,
“There is no room in this 21st century for erroneous and harmful beliefs, or for
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