A/HRC/33/22
33.
An integrated approach involving all relevant stakeholders, and incorporating civil
registration and vital statistics into relevant global, regional and national development
plans, is needed. Partnership cooperation at all levels, as defined under Sustainable
Development Goal 17 targets on the means of implementation, is crucial in terms of the
technical, capacity and financial support needed to strengthen civil registration and vital
statistics.
D.
Leaving no one behind: a human rights-based approach to monitoring
34.
In order to bring about accountability for delivering on the commitments contained
in the 2030 Agenda, particularly leaving no one behind and reaching those furthest behind
first, effective strategies for monitoring and data collection need to be in place at all levels.
The importance of an approach to monitoring and analysis that reveals the situation of all
individuals and groups within a country cannot be overemphasized, to close inequities in
outcomes and gaps in data coverage between different groups of the population. In response
to the promise that no one will be left behind, and related 2030 Agenda commitments to
equality, monitoring and review, there has been a strong drive to improve the availability
and quality of data, by way of greater data disaggregation and a “data revolution”. This
provides a key opportunity to strengthen civil registration and vital statistics as a reliable
source of data to reflect the situation of all groups of the population.
35.
The commitment to improved and disaggregated data also offers an opportunity to
expand a human rights approach to data. However, at the same time, it poses challenges for
the protection of human rights. In accordance with international legal obligations, the
monitoring and review process should be carried out on the basis of a human rights
approach throughout the data collection process, and in relation to data disaggregation. This
requires implementation of the core human rights principles and standards identified by
OHCHR and partners in this respect, which include: (a) participation, (b) disaggregation,
(c) self-identification, (d) transparency, (e) privacy and (f) accountability.24
(a)
Participation is instrumental to the realization of all components of a human
rights-based approach to data, and to retaining trust in official and other relevant data and
statistics. All data collection exercises should include means for the free, active and
meaningful participation of relevant stakeholders, in particular the most marginalized
population groups. Participation should be considered in relation to the entire data
collection process, from strategic planning through to data collection, storage, analysis and
dissemination. In some contexts, to ensure the protection of groups who may be
uncomfortable or threatened by the data collection, civil society organizations, national
human rights institutions and other relevant stakeholders should participate insofar as they
are competent to represent the groups’ interests;
(b)
Data disaggregation is a human rights obligation, a commitment in the 2030
Agenda and a need that is recognized in national statistics systems. It is essential to reveal
and enable assessment of inequality and discrimination. A human rights approach in this
regard requires focusing on the most disadvantaged or marginalized groups, and on
inequalities within the population. Capacities and partnerships should be developed to
support States in collecting and publishing data disaggregated by grounds of discrimination
recognized in international human rights law, which include sex, age, ethnicity, migration
or displacement status, disability, religion, civil status, income, sexual orientation and
gender identity. Data disaggregation is not a value-neutral exercise, and the associated risks
must be addressed. A human rights approach requires that efforts to improve the quality and
24
These principles are further elaborated in OHCHR, “A human rights-based approach to data”.
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