A/HRC/43/41
participation in all aspects of life (see A/HRC/40/32). Article 26 reinforces a cross-sectoral
approach to rehabilitation, recognizing that rehabilitation has social, educational, vocational
and other non-health components.
56.
The principles, rights and obligations enshrined in the Convention challenge
previous international bioethics standards. While international bioethics declarations and
instruments have made little reference to persons with disabilities, they have allowed some
exceptions to their right to be free from non-consensual medical treatment, research and/or
experimentation. For example, the Oviedo Convention, the Universal Declaration on
Bioethics and Human Rights and the Universal Declaration on the Human Genome and
Human Reproduction permit third persons to decide on interventions carried out on adults
who do not have the capacity to consent under the principle of best interests. As evidenced,
those standards have been superseded by the Convention.
VII. Fighting ableism
57.
The human rights model of disability provides a useful framework for challenging
ableism and addressing ethical and policy dilemmas related to advances in medical practice,
research and technology in the field of disability. States can implement a number of
measures to guarantee the rights of persons with disabilities while considering these issues,
including awareness-raising; adopting rights-based prevention policies; respecting the
personal autonomy and integrity of persons with disabilities; and taking concrete measures
to protect their right to life.
58.
When advocating for change on such issues, disability rights advocates often find
themselves in an uneasy alignment with various anti-choice groups. The Special Rapporteur
wishes to depart from those positions and emphasize that the universality, indivisibility,
interdependence and interrelatedness of human rights should inform all such discussions,
which in no way aim to roll back rights to protect autonomy and self-determination that
have been won. What the present report aims to address is how to uphold those rights
without bringing into question the rights of persons with disabilities.
A.
Awareness-raising
59.
To combat ableism, States must raise awareness throughout society regarding the
inherent dignity and rights of persons with disabilities. That involves both actively
challenging negative stereotypes and prejudices and raising awareness of their value,
capabilities and contributions. The multifaceted and multilevel nature of stigma renders the
need for multilevel interventions, including for different target audience groups. 49
Awareness-raising strategies must be complemented by legislative and policy changes,
since laws and policies that use derogatory language or discriminate against persons with
disabilities reflect and reinforce stigma.
60.
There are a number of awareness-raising strategies that have proved effective in
combating stigma and prejudices against persons with disabilities. Information-based
strategies, such as educational and media campaigns, are a useful tool for addressing the
lack of or incorrect knowledge of living with a disability and thus to dispel myths, beliefs
and/or stereotypes.50 Promoting direct contact with persons with disabilities has also proved
successful in reducing stigma, overcoming discomfort, distrust and fear, and facilitating
connection and empathy between people with and without disabilities. 51 Awareness-raising
interventions should be accompanied by peer counselling and empowerment strategies to
49
50
51
14
See Catherine Campbell and Harriet Deacon, “Unravelling the contexts of stigma: from
internalisation to resistance to change”, Journal of Community and Applied Psychology, vol. 16, No.
6 (November–December 2006).
See Wim H. van Brake and others, “Out of the silos: identifying cross-cutting features of healthrelated stigma to advance measurement and intervention”, BMC Medicine, vol. 17 (February 2019).
See Monica E. Kolodziej and Blair T. Johnson, “Interpersonal contact and acceptance of persons with
psychiatric disorders: a research synthesis”, Journal of Consulting and Clinical Psychology, vol. 64,
No. 6 (December 1996); and Heather Stuart, “Reducing the stigma of mental illness”, Global Mental
Health, vol. 3 (2016).
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