A/HRC/43/41
(a) Conduct a comprehensive legislative and policy review to abolish all laws,
regulations, customs and practices that discriminate against persons with disabilities,
including in the context of medical or scientific procedures, research and
experimentation;
(b)
Recognize, in domestic legislation, the right of persons with disabilities to
provide their free and informed consent prior to any medical or scientific procedure
and provide them with access to the support they may require in exercising that right;
(c)
Explicitly prohibit, in domestic legislation, discrimination on the basis of
disability concerning decisions to withhold or withdraw life-sustaining treatment and
organ transplantation;
(d)
Guarantee access prompt and effective remedies to protect the rights to
life and the personal integrity of persons with disabilities in the context of medical or
scientific procedures, research and experimentation;
(e)
Ensure that prevention strategies and interventions are respectful of the
inherent dignity and rights of persons with disabilities;
(f)
Where assisted dying is permitted, implement strong measures to protect
the right to life of persons with disabilities on an equal basis with others;
(g)
Actively involve and consult with persons with disabilities and their
representative organizations in all decision-making processes related to medical and
scientific practice concerning them, including law reform, policy development and
research. National bioethics committees must consult and include persons with
disabilities in their work;
(h)
Raise awareness throughout society, particularly among policymakers,
public officers, service providers and the media, regarding the inherent dignity and
rights of persons with disabilities, including by challenging negative stereotypes and
prejudices and raising awareness of their value, capabilities and contributions;
(i)
Promote and provide training on the rights and value of persons with
disabilities in medical and science faculties within universities.
77.
The Special Rapporteur recommends that the International Bioethics
Committee of the United Nations Educational, Scientific and Cultural Organization
consider the disability rights perspective in their work, including by consulting and
engaging with persons with disabilities and their representative organizations.
18
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