A/HRC/24/57
68.
As noted earlier, children with albinism are at high risk of abandonment, and women
giving birth to children with albinism are often repudiated by their husband and families.
Families frequently neglect the education of children with albinism as they believe their
education is a waste of resources. Those who attend school often suffer from teasing and
bullying from classmates. In some cases, their inability to see the blackboard, owing to
significant vision impairment, forces them to drop out of school.60 As a result, many have
low education levels and do not have all the necessary social or economic tools to live
productive lives. This marginalization can be a contributing factor to a shorter life
expectancy than for other members of the same society.
69.
The Special Rapporteur on the right of everyone to the enjoyment of the highest
attainable standard of physical and mental health noted that “people living with albinism
often do not receive the necessary special attention, health care or treatment that
corresponds to their health needs”.61 Many cannot, for example, afford simple remedies,
such as sun cream, that would protect them from the elevated risk of developing skin
cancer.
70.
Without effective and affordable access to justice, persons with albinism are denied
the possibility of claiming their rights and contesting the abuses or human rights violations
to which they are exposed.62
71.
All these forms of discrimination are interrelated, and the principle of the
indivisibility and interdependence of human rights should be highlighted.63 The right to
education of persons with albinism, for instance, is adversely affected due to the vision
impairment they suffer. A poor education, in turn, affects the right to an adequate standard
of living, consigning many persons with albinism to poverty.
72.
The right to work is provided for in article 6 of the International Covenant on
Economic, Social and Cultural Rights, which thus prohibits discrimination in access to and
maintenance of employment, including on the basis of colour and on the ground of “other
status”. It also prohibits denying or limiting equal access to decent work to all persons,
especially disadvantaged and marginalized individuals and groups.64 Reference is also made
to the ILO Convention No. 111 (1958) concerning Discrimination in Respect of
Employment and Occupation. The right of everyone to the enjoyment of the highest
attainable standard of physical and mental health is recognized by article 12, paragraph 1,
of the Covenant. According to the Committee on Economic, Social and Cultural Rights,
“health facilities, goods and services must be accessible to all, especially the most
vulnerable or marginalized sections of the population, in law and in fact, without
discrimination on any of the prohibited grounds”.65 Article 26 of the International Covenant
on Civil and Political Rights, article 5 of the International Convention on the Elimination of
60
61
62
63
64
65
14
The Special Rapporteur on the right to education has referred to dropout rates of children with
albinism and ways to reduce them (press statement, “Not ghosts”). All the written submissions
received from civil society referred to discrimination in education and/or incessant bullying and
name-calling.
See press statement, “Not ghosts”.
See paragraphs 49–56 of the present report describing the challenges persons with albinism face in
accessing justice.
See for instance, Committee on Economic, Social and Cultural Rights, general comment No. 14
(2000) on the right to the highest attainable standard of health, paragraph 3, referring to how the right
to health is closely related to and dependent upon the realization of other human rights, including the
rights to food, work, education, human dignity, life, non-discrimination and the prohibition against
torture.
Ibid., general comment No. 18 (2005) on the right to work, paragraphs 12 (b) (i) and 23.
General comment No. 14, paragraph 12 (b).
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