A/HRC/44/46
general comment No. 3 (1990) on the nature of States parties’ obligations of the Committee
on Economic, Social and Cultural Rights, the Special Rapporteur recalls that, while being a
flexibility device, the concept of progressive realization obligates States to move as
expeditiously and effectively as possible towards the realization of the goals of the
Covenant. Moreover, and in accordance with the Convention on the Rights of Persons with
Disabilities, an adequate standard of living is only effective to the degree that individuals
can live a dignified life and participate on equal terms in society at large. The principles and
guidelines state that the fulfilment of the right to an adequate standard of living for persons
affected and their families entails access to goods, services and infrastructure, but also
poverty reduction measures, as well as education and work opportunities, linking an
adequate standard of living to autonomy and personal development.
A.
Social protection
11.
Persons affected by leprosy and their families continue to bear the impact of
systemic and multilayered discrimination and marginalization, which have positioned them
as the furthest behind. Such structural disadvantage calls for protective measures to be
implemented, irrespective of contributory scheme or employment status. National policies
should establish minimum standards of social protection and benchmarks for persons
affected and their family members.
12.
According to the Social Protection Floors Recommendation, 2012 (No. 202), of the
International Labour Organization (ILO), States should establish national social protection
floors that can ensure income security and universal access to essential health care. In line
with article 9 of the International Covenant on Economic, Social and Cultural Rights and
general comment No. 19 (2007) on the right to social security of the Committee on
Economic, Social and Cultural Rights, the principles and guidelines state that financial
measures that can guarantee the right to an adequate standard of living, such as benefits for
those who cannot work due to age, illness or incapacity, or financial assistance for housing
and health care to persons living in poverty, should be made available. According to the
Committee, the right to social security may be mandatory for the realization of other social,
economic and cultural rights. The Committee therefore recommends that States guarantee
access to social security schemes for enabling individuals and families to acquire essential
health care, basic shelter and housing, water and sanitation, food and the most basic forms
of education. Such access should be non-discriminatory and should take into consideration
the special needs of marginalized individuals and groups. An important point made by the
Special Rapporteur on the rights of persons with disabilities was that the Convention on the
Rights of Persons with Disabilities was paving the way towards an inclusive
conceptualization of social protection that could promote active citizenship, social inclusion
and participation, in opposition to paternalistic approaches that reinforced dependence and
segregation (see A/70/297).
13.
Given the interlinkage of leprosy and poverty, the right to an adequate standard of
living may not be accomplished without the prior granting of social benefits under a rightsbased comprehensive social protection policy. Such a policy must be implemented through
administrative services and bureaucratic procedures that can guarantee full accessibility to
illiterate or poorly educated populations, as well as to populations living in remote or
peripheral areas. Furthermore, social benefits, such as unconditional cash transfers, should
take into consideration the real needs of the target population, including the additional costs
of disability. Such a comprehensive social protection policy should sensitively ponder
mainstream and specific programmes and target active citizenship by bridging guarantees to
basic income security to policies that promote training opportunities and formal
employment
B.
Work and training opportunities
14.
Multilayered discrimination has pushed many persons affected by leprosy and their
family members out of formal employment opportunities. A significant number of
individuals are left to engage in unreliable casual labour, with low wages, in unsafe and
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