A/HRC/41/47
67.
By the same token, responses to the question about protection by work legislation
during treatment in the case of physical impairments and disability evinced a low awareness
of rights, with 31.6 per cent affirmative answers, 30 per cent negative replies, and as many
as 38.4 per cent of responders affirming that they did not know. Concomitantly, the same
question applied to mothers of children affected by leprosy, asking whether work
legislation allows them to care for their children affected by leprosy during treatment,
received 29.4 per cent positive replies and 29.4 per cent negative answers, while 41.2 per
cent did not know the answer.
68.
In turn, when asked if women affected by leprosy-related disabilities have access to
social security benefits, 56.4 per cent of the respondents replied yes, 25.7 per cent no and
17.9 per cent did not know, which is an encouraging indicator. However, the question on
which impairments are recognized by State policies and administrations as disability
highlighted a knowledge gap and low awareness of leprosy’s characteristics among State
policymakers and workers that fails to acknowledge non-visible physical impairments as
falling under the umbrella of disability rights.
69.
With regard to social protection of children affected by leprosy, the responses to the
question whether there are any measures in place for protecting the rights of children
affected by leprosy-related disabilities were mainly “don’t know”. Accordingly, the
responses to the question on the existence of measures in place to ensure that children
affected by leprosy-related disabilities can proceed with their studies with reasonable
accommodation evinced low awareness of rights as well as deficient access to enshrined
international human rights, with 35.6 per cent of the responses being affirmative, 34.5 per
cent negative and 29.9 per cent answering “don’t know”.
70.
With respect to health care, the majority of responses pointed to the existence of a
health system in place that provides medical care for leprosy. The main gaps, according to
the responses received, occur due to the inability of the system to address extra-institutional
barriers to the right to the highest attainable standard of health and also to provide
complementary care, especially after bacteriological cure. Many responses also pointed to
practices of medical pluralism and ongoing recourse to traditional healers to treat leprosy
with religious healing and exorcising, among other practices. When asked to choose from
among several barriers to access to health services, those most frequently chosen were the
lack of health facilities near the home and lack of financial resources.
71.
Finally, participation was also assessed, and collected data point to very low
participation of women affected by leprosy, and even less by children affected by leprosy,
in health services and settings, outreach activities, organizations of persons affected by
leprosy and NGOs, as well as in the design, target-setting, prioritization, delivery or
monitoring of local/regional/national planning for leprosy.
72.
Lack of access by persons affected by leprosy and their family members to
substantive equality is a result of the structural violence imposed upon this group that keeps
the group enclosed in a spiral of disadvantage. Structural violence reflects the systematic
restrictions that impair people who occupy the bottom rungs of society from meeting their
basic needs and that may even cause harm in a way that leads to deprivation and denial of
fundamental human rights. This is even more the case of women and children affected by
leprosy who, due to the intersection of leprosy with gender and age, experience widespread
and systemic structural violence.
the right to the highest attainable standard of health of the Committee on Economic, Social and
Cultural Rights.
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