A/HRC/41/47
participation of women, children and men affected by leprosy-related impairments
and disabilities;40
(d)
Establish reparation measures for persons affected by leprosy, as well as
for their children when appropriate, who were forcibly segregated by State policies, in
order to address the continuous nature of the violation;
(e)
Eliminate the iatrogenic stigma generated by prophylactic State
segregation, with dissemination of accurate information on leprosy and preservation
of its history;
(f)
Develop awareness-raising programmes at both the national and
subnational levels, with a focus on providing accurate information about leprosy to
the general population as well as on the human rights of persons affected by leprosy.
Such programmes should provide for dialogue with all relevant population groups
(including those possessing non-scientific knowledge and non-official authorities);
involve persons affected by leprosy; and be sensitive to local languages, gender, age
and disability;
(g)
Improve monitoring systems for leprosy, comprising disaggregated and
equality data that may support anti-discriminatory policies. Leprosy health services
should include easy-to-access mechanisms for making complaints of discrimination;
(h)
Implement multisectoral governance, and affirmative measures when
necessary, in order to tackle the multiple nature of leprosy-related discrimination and
vulnerability. Multisectorality should also be reflected in leprosy health services,
guaranteeing accessibility, comprehensive care and peer counselling.
2.
Recommendations for enforcing the human rights of women affected by leprosy
93.
The Special Rapporteur recommends that States, national human rights
institutions and civil society organizations take all necessary measures to:
(a)
Ensure that human rights monitoring of gender-based discrimination
and violence includes the particular situation of women affected by leprosy. Leprosy
monitoring systems and public health strategies should also make use of a gender
framework that ensures autonomous, affordable and effective comprehensive care
(A/HRC/32/44). Primary care, especially in high-burden areas, should include female
health workers. Leprosy services should provide training on self-care techniques and
peer counselling;
(b)
Include women affected by leprosy in national plans for gender equality,
gender violence prevention and women’s access to justice and raise awareness on
gender equality in leprosy services, high-burden communities and priority groups;
(c)
Empower women affected by leprosy to know their rights and how to
claim them, including through income-generation programmes, creation of
cooperatives and continued education, in order to secure for them economic
independence and access to dignified work, which should guarantee reasonable
accommodation;
(d)
Establish affirmative measures for ensuring equality of participation of
women affected by leprosy in any decision-making that affects their lives, as well as in
the mechanisms of representative and participatory democracy, non-governmental
organizations, epistemic communities and health services.
3.
Recommendations for enforcing the human rights of children affected by leprosy
94.
The Special Rapporteur recommends that States, national human rights
institutions and civil society organizations take all necessary measures to:
40
18
In line with general comment No. 7 (2018) on the participation of persons with disabilities, including
children with disabilities, through their representative organizations, in the implementation of the
Convention of the Committee on the Rights of Persons with Disabilities.
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