A/HRC/41/47
I. Introduction
1.
The present report is submitted pursuant to Human Rights Council resolution 35/9,
in which the Council established the mandate of the Special Rapporteur on the elimination
of discrimination against persons affected by leprosy and their family members. In its
resolution, the Council recognized that specific attention is needed to address all forms of
discrimination against persons affected by leprosy and their family members, and mandated
the Special Rapporteur to report to the Council on progress made and measures taken by
States for the effective implementation of the principles and guidelines for the elimination
of discrimination against persons affected by leprosy and their family members
(A/HRC/15/30, annex).
2.
Following the first report (A/HRC/38/42), in which the Special Rapporteur outlined
the vision, priorities and working methods of the mandate, the present report aims at
unveiling the multiple nature of discrimination on the grounds of leprosy, focusing on the
particular experience of women and children. In order to present a comprehensive
description, foster bottom-up participation and promote future evidenced-based policies, the
Special Rapporteur methodically resourced more than 600 contributions. She looks into the
pervasive structural disadvantage that allocates women and children affected by leprosy to
a context of intersecting vulnerabilities and multilayered discrimination, simultaneously
acknowledging the shared subordinated status of both groups and rejecting their
representation as a composite concept. The Special Rapporteur identifies specific human
rights violations against each group, alongside pragmatic and concrete steps for eliminating
ongoing institutionalized, structural and interpersonal discrimination. 1
3.
As with some historically ascribed identity categories (such as race, gender or
sexuality), leprosy, also known as Hansen’s disease, has been infused in such a way with
moral, religious, cultural and political meanings throughout history that it became a label
that unremittingly produces and reproduces a deeply stigmatized social category. Labelling
is at the root of discrimination on the grounds of leprosy. It is labelling, and not leprosy
itself, that disrupts the social location 2 of a person diagnosed with the disease and that
symbolically homogenizes a group of people within deeply ingrained stereotypes framed by
negative attributes.
4.
The overlapping of harmful stereotypes, wrongful stereotyping3 and structural
iniquities strengthens exclusion, discrimination and violence on the grounds of leprosy and
compromises the enjoyment of fundamental rights, such as dignity, equality and nondiscrimination, by millions of persons affected by leprosy worldwide, as well as by many of
their family members. Stigmatization of persons affected by leprosy remains
institutionalized in the State’s architecture and functioning: more than 50 countries in the
world keep hundreds of discriminatory laws against persons affected by leprosy in force, 4
while discriminatory practices at the State’s administration services endure.
1
2
3
4
2
The Special Rapporteur wishes to express her gratitude to the valuable cooperation received from
States; national human rights institutions; the World Health Organization (WHO); the Pan-American
Health Organization; national leprosy programmes; the International Federation of Anti-Leprosy
Associations, in particular the Sasakawa Memorial Health Foundation; the International Federation’s
panel of persons affected by leprosy; Global Partnership for Zero Leprosy; leprosy and law experts
and activists; organizations of persons affected by leprosy and their representatives; and, most of all,
to the women and men affected by leprosy, as well as many of their family members, who
consistently support the Special Rapporteur’s work.
The Special Rapporteur makes use of the concept as presented in the report of the Special Rapporteur
on violence against women, its causes and consequences (A/HRC/17/26).
The Special Rapporteur makes use of the conceptual frame developed in the report commissioned by
the Office of the United Nations High Commissioner for Human Rights entitled Gender Stereotyping
as a Human Rights Violation (2013).
See www.ilepfederation.org/wp-content/uploads/2018/11/Updated-discriminatory-laws-table-Final1.pdf.
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