A/HRC/28/75
should be developed and implemented in coordination with, and with the support of, State
authorities, various sectors of society, key stakeholders and civil society, as well as persons
with albinism. Key non-governmental organizations such as Under The Same Sun and the
World Albinism Alliance are important actors in that endeavour.
73.
The commitment of all stakeholders to combat violence and discrimination against
persons with albinism is critical. It is important to involve religious leaders who are well
respected and influential in their communities and are in a position to provide followers
with guidance on the issue of respect for the human rights and dignity of persons with
albinism.52
B.
International community
74.
International and regional mechanisms should continue to give the necessary
attention to the issue. Some of its facets can be integrated across existing human rights
mechanisms, but credible data on cases of attacks and discrimination in several countries
are few and far between or not entirely reliable.53 Action should be taken to gather such
information in order to put in place effective preventive and remedial action. Gathering
information should be an independent process and ought not to be expected of existing
special procedures mandate holders, as it is beyond their current scope and capacity.
75.
Therefore it is necessary to consider setting up a specific dedicated mechanism to
work on ending violence against persons with albinism and the structural and multi-layered
discrimination they face. A large number of the answers to the questionnaire of the
Advisory Committee called for the establishment of such a mechanism. A call for a specific
and dedicated special procedure was also made by the participants at the expert meeting.
76.
The special procedure would initiate and foster a holistic approach to the issue.
Further, the mandate-holder would have better access to information, improved
understanding of albinism both regionally and globally, and could initiate as well as follow
up on concrete measures taken on the ground, through regular field visits and cooperation
with authorities, civil society and other key stakeholders.
77.
In conclusion, a dedicated special procedure mandate would be a first step towards
ensuring an effective, comprehensive and more sustainable response to the human rights
violations faced by persons with albinism.
52
53
18
Ibid., para. 58.
See Under The Same Sun (UTSS), “Reported attacks of persons with albinism” (PWA) — Summary,
available from www.underthesamesun.com/sites/default/files/Attacks%20of%20PWA%20%201%20page_0.pdf.
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