A/HRC/43/42/Add.1
71.
South African authorities face difficulties in identifying and apprehending
perpetrators of attacks, notably when these are related to the cross-border trade in body
parts of persons with albinism. Although the Trafficking Act exists, the Independent Expert
is not aware of how many albinism cases have been prosecuted under this Act, despite the
likelihood that the black market for ritual killings is continuing. Its implementation needs to
be evaluated. In the case of Gabisile Shabani, for instance, the mutilated child with albinism
was found in a shallow grave with several body parts missing, which are reportedly in
Eswatini. A traditional healer from Eswatini was implicated in the crime, and to date the
case is stalled – reportedly for technical reasons – and family members have not been able
to bury the victim with dignity.
(h)
Representation
72.
Representation is crucial for social inclusion. In all relevant public processes and
discourses – on disabilities, health and education, among others – it is important to make
efforts to reach out not only to persons with disabilities, but also to those who have rarely
been represented in such arenas. The Independent Expert notes that the Government has
made commendable strides in this area.
73.
Throughout the visit, the Independent Expert was very concerned at the inaccurate
portrayal of persons with albinism in public discourse. These misrepresentations feed into
the stigma and discrimination that persons with albinism experience on a daily basis. The
Independent Expert urges the creative arts industry and the media to engage in responsible
narratives by consulting widely in developing shows that are on television and radio,
among other media, and to include persons with albinism in ordinary roles that highlight the
positive contributions that they make to society as any other person in South Africa does.
She also calls on all media personalities, particularly journalists who report on crimes
against persons with albinism, to report on these cases sensitively and responsibly. This
includes avoiding the use of dehumanizing names, and sensational reporting, and leaving
out the alleged prices of body parts, which could incentivize perpetrators of attacks.
74.
Some good practices to further enhance representation include appointing
champions for albinism. This should include various persons with albinism of various
ethnicities. It should also involve influencers with albinism using their platforms to raise
awareness about the condition and to debunk myths and misbeliefs. The Independent
Expert was pleased to watch a performance by persons with albinism, supported by the
Department of Sports, Arts and Culture, entitled Mama, I Want To Be the Black That You
Are, which gave a holistic portrayal of the struggles and pains experienced by persons with
albinism. Renowned public influencers such as artists and models with albinism also met
with the Independent Expert and provided insight on how they raise awareness by sharing
widely their personal journeys.
75.
Cultural events, and popular platforms showcasing the beauty of albinism as a part
of diversity, help raise awareness in popular forums. These help to mitigate the “us versus
them” narratives that are inadvertently produced through awareness-raising activities. They
also help depict the lives of persons with albinism as “ordinary”, and to debunk myths,
misbeliefs, prejudice or negative stereotypes about them.
76.
The Independent Expert held a consultation with over 40 civil society organizations
representing persons with albinism from six provinces including Eastern Cape, Gauteng,
KwaZulu-Natal, Limpopo, Northern Cape and North West. From the consultation, a task
force was formed to facilitate collective decision-making and advocacy. The task force,
with the help of government and other stakeholders, will develop a time-bound national
action plan of concrete measures together with an implementation strategy to promote the
enjoyment of human rights for persons with albinism. This is a best practice that is
employed in neighbouring countries, as it unifies persons with albinism, and provides an
avenue for government to concretely intervene in areas that persons with albinism
themselves have identified as priorities.
77.
The Independent Expert urges the Government not only to support the development
of this national action plan, but also to fund its processes and, at the least, some of the
priorities identified in it, as has been done in other countries in the region such as Kenya
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