A/HRC/44/48
12.
The Bali Declaration of August 2018, issued by Transforming Communities for
Inclusion-Asia Pacific, was composed by persons with psychosocial disabilities and crossdisability supporters from 21 countries of the Asia-Pacific region. They affirmed the need
for a paradigm shift in mental health towards inclusion and away from a focus dominated
by the medical model. Instead of focusing efforts on reform systems that violate rights, the
focus should be on developing and strengthening existing movements for the non-violent,
peer-led, trauma-informed, community-led programmes, healing and cultural practices
preferred by local groups of persons with psychosocial disabilities, attentive to the
movement of non-medical alternatives and progressive community support worldwide.
Similar approaches are shared by organizations in other regions, such as Mental Health
Europe. This advocacy direction is an important means to transform the global conversation
and rebalance it away from the expansion and improvement of services as the main
response to mental health and from the impetus in global mental health to scale up access to
mental health for all, especially in low- and middle-income countries.5
B.
Participation and power: a global perspective
13.
The participation of persons with mental health conditions, including persons with
disabilities, in the planning, monitoring and evaluation of services, in system strengthening
and in research, is now more widely recognized as a way to improve the quality,
accessibility and availability of services and the strengthening of mental health systems. 6
Promising evidence and guidelines in this area exist in high-income countries:7 the Special
Rapporteur has observed promising practices in “medication-free” treatment wards in
Norway and in a rights-based pilot project in Sweden, where the use of peers has been
employed to confront power asymmetries and support dialogical, non-coercive approaches.
There is little evidence available to show where and how this has been done in low- and
middle-income countries, particularly at the systems or policy level.
14.
While empowerment is often referred to, power has been a neglected topic in global
mental health. Recently, some attention has been paid to the need to rebalance power
towards local actors to mitigate the “inappropriate application of ideas not well-suited to
local needs”.8 In that context, equalizing global power dynamics is a promising pathway
towards rights-based transformation across all resource settings. All States, regardless of
income level, remain embryonic in their status of development towards integrating new
normative frameworks and practices that can liberate the field of mental health from
discriminatory and other outdated attitudes and practices.
15.
However, discussions about power in global mental health decision-making, agendasetting and knowledge production remain largely absent. In addition, the global literature is
less prominent in engaging with the research and literature conducted and written by those
who identify as service users or psychiatric survivors, or as persons with psychosocial
disabilities. Much of that research and literature originates in the global North, which
means that participation does not necessarily extend to persons with disabilities living in
low- and middle-income countries.9
16.
Emerging power dynamics within the psychiatric profession have traditionally
reinforced the status quo dominated by the biomedical paradigm. However, psychiatry is
not a monolith and many members of the psychiatric community across all regions are
5
6
7
8
9
approaches to mental health in Kenya”, doctoral dissertation, Harvard T.H. Chan School of Public
Health (May 2019).
See Lancet Global Mental Health Group, “Scale up services for mental disorders: a call for action”,
The Lancet, vol. 370, No. 9594 (October 2007).
See Angela Sweeney and Jan Wallcraft, “Quality assurance/monitoring of mental health services by service
users and carers”, WHO Regional Office for Europe; and Graham Thornicroft and Michele Tansella,
“Growing recognition of the importance of service user involvement in mental health service planning and
evaluation”, Epidemiology and Psychiatric Sciences, vol. 14, No. 1 (March 2005).
National Survival User Network, “4Pi national involvement standards” (2013).
See Julian Eaton, “Rebalancing power in global mental health”, International Journal of Mental
Health, vol. 48, No. 4 (2019).
See Pan-African Network of People with Psychosocial Disabilities, “Voices from the field. The Cape
Town Declaration (16 October 2011), Disability and the Global South, vol. 1, No. 2 (2014).
5
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