A/HRC/37/57
98.
In this regard, the Independent Expert also recommends that member States:
(a)
centres;
Include specific services for persons with albinism in existing health
(b)
Provide guidance for health professionals on the care needed by persons
with albinism and ensure that the training of health workers, including
ophthalmologists, dermatologists and nurses, includes topics on the condition of
albinism and protective measures;
(c)
Ensure that albinism is included in early intervention programmes on
health, including dissemination of detailed health-care information and advice;
(d)
albinism;
Develop specific, concrete and time-bound national action plans on
(e)
Ensure the prompt provision of medical and psychological support to the
victims of attacks and their families;
(f)
Ensure that the right to the highest attainable standard of health is
exercised without discrimination of any kind, in particular against persons with
albinism;
(g)
Adopt special measures, if necessary, to guarantee equal access to health
care for persons with albinism. Such measures should be based on statistical data and
supported by adequate funding;
(h)
Gather data systematically on persons with albinism, including when
collecting data on health or disabilities, and by inserting a specific question on
albinism in questionnaires when conducting population censuses;
(i)
Adopt public health policies to address issues affecting persons with
albinism, ensuring their full participation in the process of elaborating such policies
and in awareness-raising action on such policies;
(j)
Ensure that measures regarding the right to health of persons with
albinism are the responsibility of the institution in charge of the issue, such as the
ministry responsible for health;
(k)
Ensure that the institution in charge of the issue, such as the ministry of
health, carries out its mission in coordination with other relevant institutions, such as
those in charge of disabilities, education, labour and social protection, as well as those
with responsibility for women and children’s rights.
99.
Concerning skin cancer and visual impairment, the Independent Expert
recommends that member States:
(a)
Include sunscreen on the list of essential medicines without further
delay;
(b)
Ensure the availability, accessibility, affordability and quality of
treatment for skin cancer without discrimination. Such treatment should include
curative measures, as well as cosmetic treatment to restore or improve appearance to
avoid further discrimination based on appearance;
(c)
Deliver accessible and culturally appropriate rehabilitation
programmes, particularly concerning skin cancer and visual impairment;
(d)
Support or initiate the production and distribution of locally produced
sunscreen, such as KiliSun. Distribution should include health education on the use of
such a product;
(e)
Support best practices, such as mobile clinics where they exist or initiate
such measures;
(f)
Ensure that specific measures for persons with albinism are integrated
into disability-related programmes, including the distribution of vision devices as a
means of reasonable accommodation;
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