A/HRC/37/57
Intersecting and multiple discrimination
29.
Persons with albinism are discriminated against on the basis of intersecting grounds,
largely based on disability and colour. According to reports and direct observation,
discrimination based on colour exacerbates the consequences of disability, in particular
when there is high degree of contrast between the colouring of persons with albinism and
that of the dominant population. According to Patricia Lund, in sub-Saharan Africa for
example, “this appearance, so strikingly different from normally pigmented family
members and the rest of the black community, results in problems of acceptance and social
integration for those affected.”22
30.
In other words, discrimination against persons with albinism should be understood
as a specific situation stemming from the intersection of both disability and colour. Also,
multiple discrimination affects subgroups and individuals among people with albinism. For
instance, persons with albinism who are women and those affected by HIV/AIDS face
aggravated discrimination.23
31.
Therefore, an understanding of the challenges and identification of promising
practices to ensure the right of persons with albinism to the highest attainable standard of
physical and mental health require a holistic approach. Such an approach should also
address the contextual and exogenous determinants that underpin specific situations at the
intersection of both disability and colour, which manifest themselves with different degrees
of severity according to the specific context.
IV. Issues and challenges
32.
The most pressing health issue faced by persons with albinism is skin cancer. That
fact has been firmly established on the basis of several studies and consultations with civil
society organizations, particularly those working with persons with albinism. In addition to
skin cancer, other urgent health issues include visual impairment and mental health.
33.
Persons with albinism are also subject to other health problems not linked to the
condition of albinism. Those include common conditions and illnesses to which they have
become more vulnerable, owing to poverty and pre-existing discrimination and neglect of
albinism in the health and social services system, in general. Organizations of persons with
albinism reported specific health problems, such as malnutrition and dehydration, tropical
diseases, such as malaria and typhoid fever, infectious diseases, HIV/AIDS, cholera and
chronic non-communicable diseases.
34.
At present, the enjoyment of the right to the highest standard of mental and physical
health by persons with albinism is far from a reality. As a consequence, health issues and
intersecting discrimination in the context of exogenous factors have an impact on the
enjoyment of other human rights, such as the right to life and socioeconomic rights.
A.
Impact of health issues on the right to life
35.
The most serious health issue affecting the enjoyment of the right to life by persons
with albinism is their susceptibility to skin cancer. In addition, the discrimination and
stigmatization arising from skin colour leads to immediate life-threatening crimes in
contexts in which witchcraft-related misbeliefs and harmful practices are widespread.
High susceptibility to skin cancer
36.
It has been indicated in several reports that most persons with albinism in subSaharan Africa die from skin cancer between the ages of 30 and 40 years. 24 In the case of
22
23
24
8
P.M. Lund, “Oculocutaneous albinism in southern Africa: population structure, health and genetic
care”, Annals of Human Biology, vol. 32, No. 2 (2005), pp. 168–173, at pp. 168–169.
Submission of the Association Ivoirienne pour la Promotion des Femmes Albinos.
Submissions of Connexion Worldwide and the Source of the Nile Union of Persons with Albinism.
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