A/HRC/37/57
Attacks, rape, mutilation, infanticide and trafficking of body parts
40.
Discrimination and stigmatization against persons with albinism, owing to myths
and misbeliefs, lead to several human rights violations. Foremost is the violation of the
right to life, which often takes the form of attacks, mutilations, trafficking of body parts and
infanticide. For instance, in Benin, there are reports that infanticide has been carried out
based on the misbelief that children with albinism cause misfortune. 32 Similarly, in
Zimbabwe, it is reported that, “traditionally, children with albinism were associated with
witchcraft and bad omens and were killed at birth”.33 Instances of infanticide have also been
reported in Swaziland.34 Furthermore, there is also the prevalent “death myth”, which holds
that persons with albinism do not die but simply disappear.
41.
In some regions, it has been reported that persons with albinism are the subject of
positive misbeliefs, such as being considered gods or quasi-deities, as in southern Benin 35
or in the Kuna Lands in Panama. 36 In those cases, the misbeliefs do not generate a direct
threat. However, their apparently benign origin is not to be automatically looked upon as
favourable since they are still misbeliefs, ignorant of the condition of albinism. Such
misbeliefs are also dangerous because they associate the value, dignity and, ultimately, the
human rights of persons with albinism with a subjective interpretation, which could change
over time.
42.
The life expectancy of persons with albinism, particularly children and women with
albinism, is also put at risk by harmful practices based on misbelief and witchcraft. A
number of countries in sub-Saharan Africa continue to be affected by the ritual defilement
and rape of girls and women with albinism because of the belief that their body parts have
magic or medicinal qualities. This situation has been caused by the myth that having sexual
intercourse with a woman with albinism can cure HIV/AIDS. As a result, persons with
albinism, in particular women and children, are more susceptible to HIV infections and face
further stigmatization and self-isolation. Persons with albinism who are HIV-positive may
not seek treatment for fear of being easily identified. All those factors constitute a
multifaceted barrier affecting the right to live in dignity and the life expectancy of persons
with albinism, in particular, women and children with albinism.
B.
Impact of health issues on socioeconomic rights
43.
The absence of reasonable accommodation for visual impairment and health care
regarding susceptibility to cancer hamper the enjoyment of the right to health, as well as
other socioeconomic rights. Access to education and employment by persons with albinism
are particularly undermined.
Right to education
44.
Visual impairment and the associated lack of reasonable accommodation represent a
serious barrier to keeping children with albinism in school. In addition to stigmatization and
bullying, visual impairment partly accounts for low school attendance. The high
susceptibility of skin to cancer and other conditions also act as barriers in accessing
education when reasonable accommodation is not provided. For instance, participants at the
first Fiji Albinism Awareness Symposium, held in 2015, observed that vision aids and
sunscreen were not generally available for children in village schools.
45.
Often, the absence of reasonable accommodation at school is due to the lack of
awareness about albinism among communities and teachers. For instance, the belief that
32
33
34
35
36
10
Submission of Connexion Worldwide.
J.S. Taylor and P.M. Lund, “Experiences of a feasibility study of children with albinism in Zimbabwe:
a discussion paper”, International Journal of Nursing Studies, vol. 45, No. 8 (2007), p. 1250.
Submission of Stukie Motsa Foundation, Swaziland.
Submission of Connexion Worldwide.
P. Jeambrun, “Oculocutaneous albinism: clinical, historical and anthropological aspects”, Archives de
pédiatrie: organe officiel de la Societe francaise de pediatrie, vol. 5, No. 8 (August 1998), pp. 896–
907.
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