A/HRC/28/37
include individually designed support for personal hygiene, meals, dressing, mobility and
communicating with others. Persons with greater support needs in Thailand can apply for a
personal assistant for a maximum period of six hours per day or 180 hours per month. In
the Republic of Korea, about 50,000 persons with disabilities had benefited from personal
assistance services as at January 2013.
34.
Personal assistance should be available to all persons with disabilities. However, in
many countries it is available only to persons with certain impairments. The Committee on
the Rights of Persons with Disabilities has expressed concern at such limitations in its
dialogue with States parties.29 A range of personal assistance approaches, including peer
support and advocacy, crisis respite and planning, non-medical support to deal with altered
perceptions, assistance to meet practical needs of everyday life, advocates for decisionmaking support and living support networks to help make connections in the community,
have proved particularly beneficial to persons with psychosocial or intellectual disabilities.
The provision of access to personal assistants for persons with intellectual and psychosocial
disabilities is essential to moving from a medical to a social approach concerning mental
health issues with respect to personal autonomy.
3.
Naturally occurring community support
35.
Alongside the variety of services identified, naturally occurring community support
is provided informally to persons with disabilities by family, friends or other members of
the community. In some countries policies stipulate that the responsibility to assist persons
with disabilities rests with their families. That approach is also sometimes encouraged
through incentives such as social security benefits, allowances and pension schemes or
eligibility criteria to qualify as service providers.
36.
Support provided by family, friends and the broader community is extremely
important and should be encouraged in order to promote inclusive and respectful societies;
in many situations this is the only support available. Nevertheless, exclusive reliance on
informal support can have adverse consequences, including by endorsing gender
stereotypes of women as care providers. When women are the principal care providers in
families, as mothers they are often exposed to higher levels of stress and fatigue, and as
siblings they lose out on opportunities for education. Family support may also affect the
choice and control that persons with disabilities exercise over the type of support required,
in particular when support is encouraged by State benefits. Women with disabilities may
also be exposed to higher risks of segregation, violence and abuse. Provision of informal
support may mean that the number of working members in the family is reduced, which
will have a direct impact on household income and gross domestic product. Finally, relying
on informal support may not be sustainable, as the family members may not be able to
provide such support as they age or if they fall ill.30
4.
Requisites for adequate support
37.
In certain contexts training is essential, in order to ensure that support is in
conformity with the standards of the Convention on the Rights of Persons with Disabilities,
responds to needs and respects the individual’s will. The Personal Assistants Training
Programme in Trinidad and Tobago, for instance, comprises classroom and practical
training, as well as a 15-month period of on-the-job training. Certification and evaluation
are equally important. Specific training should be directed at professionals who currently
29
30
See, for instance, CRPD/C/AUT/CO/1.
See, for instance, WHO and World Bank, World Report, p. 142.
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