A/HRC/43/42 104. The Independent Expert recommends that Member States take the following measures, which require integration of the issues raised in the present report into the relevant sectors. 105. Incorporate albinism into public health initiatives, including through: (a) Maternal and family support policies; (b) Cancer prevention policies; (c) Rare condition policies; (d) Genetic counselling policies, consanguineous marriage practices. 106. particularly in communities with Implement albinism development initiatives, including through: (a) National development plans and strategies aimed at the protection of vulnerable groups, which give life and true meaning to the pledge in the 2030 Agenda for Sustainable Development to leave no one behind; (b) The elimination of harmful practices; (c) Policies relating to disability, education and access to justice; (d) Policies relating to ending colour and racial discrimination. 107. The Independent Expert recommends that Member States ensure provision of the following to women and children with albinism: (a) Access to education and socioeconomic development; (b) Income-generating activities; (c) Adaptive devices, among other measures of reasonable accommodation, to improve access to employment and education; (d) Human rights training and capacity development for organizations representing women and children impacted by albinism; (e) Access to justice, redress and rehabilitation; (f) Remedial support for women and children who have been victims of attacks, including rehabilitation services, in the form of medical, psychological and socioeconomic support in regaining their livelihood; (g) Adequate witness protection for women and children impacted by albinism who wish to testify against family or community members who have perpetrated attacks against them; (h) Quality legal counsel at no cost to witnesses of attacks, particularly for survivors who testify during trial to ensure substantive and procedural fairness in accessing judicial remedies. 108. The Independent Expert recommends that Member States empower civil society organizations representing persons with albinism to: (a) Raise awareness about albinism among health and medical professionals, particularly in the maternity, oncology and cancer prevention sectors, by integrating albinism into existing training modules; (b) Adopt awareness-raising measures to educate men about the genetic origins of albinism. 109. The Independent Expert recommends that Member States include persons with albinism in national censuses, pursuant to best practices and the recommendation of the Washington Group on Disability Statistics, and in national health surveys in order to gather data disaggregated at a minimum by sex and age. 20

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