A/HRC/43/42
B.
Access to health
84.
The National Disability Insurance Scheme in Australia supports mothers of babies
with albinism to access early interventions for their children. This includes information on
and services for sun protection and low vision services to assist the child to make the most
of his or her vision and to be mobile in a manner that is safe and independent.115
85.
The Uganda Revenue Authority provides tax exemptions on imported products to
support the health of persons with albinism, such as sunscreen. 116 The non-governmental
organization Source of the Nile Union of Persons with Albinism has thus been able to
import thousands of bottles of donated sunscreen duty-free for many persons with albinism,
including women and children. 117 In the United Republic of Tanzania, with the support of
the Government, the United Nations Children’s Fund (UNICEF) and non-governmental
organizations such as KiliSun and Standing Voice, sunscreen is produced locally and
distributed to persons with albinism, especially children, across the country.
C.
Rehabilitation and psychosocial support
86.
The non-governmental organizations Under the Same Sun and Standing Voice, both
of which are based in the United Republic of Tanzania, have established rehabilitation
facilities and services for survivors of violence, particularly women and children impacted
by albinism. The facilities and services include counselling and socioeconomic programmes
aiming to heal the survivors of violence and assist them to again become productive
members of their communities.118
D.
Employment and an adequate standard of living
87.
The Upendo wa Mama group in the United Republic of Tanzania empowers its
members to support themselves and their families through jewellery-making, soap-making,
making beeswax products, sewing and baking. Under the Same Sun also invests in the
education of children with albinism, particularly those from the poorest families, and
victims of attack and displacement. Their entire education, from primary to tertiary, is paid
for by Under the Same Sun and its partners. A partnership with Standing Voice ensures that
their health and well-being are checked and that they are provided with the necessary
adaptive devices. Furthermore, after they graduate, Under the Same Sun provides them with
training in employment integration and support in job placement. To date, hundreds of
children with albinism have received this support and have successfully graduated. This
programme is transformative for their standard of living and in terms of changing the
perception of society vis-à-vis the capacity of children with albinism and persons with
albinism more broadly.119
88.
Additionally, some Member States have adopted legislation and affirmative action
policies in public offices as described above or in employment in general. These laws and
policies also mandate reasonable accommodation at the workplace for persons with
disabilities. For instance, Denmark, Slovenia and Spain, among others, provide grants to
employers that need to provide reasonable accommodation for their employees with
disabilities.120
89.
Denmark also provides financial aid to families with a child with albinism until the
child is 18 years old. In Fiji, the Government is implementing a policy of providing 10,000
Fiji dollars of financial support to all households with an annual income of 50,000 Fiji
dollars or less for the purchase of a house or an apartment. This is important for the
115
116
117
118
119
120
Submission from Australia.
Submissions from Uganda and Zimbabwe.
Submission from Uganda.
Submissions from Malawi and United Republic of Tanzania.
See www.underthesamesun.com/content/education-support.
Submissions from Denmark, Slovenia (Government) and Spain.
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