A/HRC/43/41/Add.2
59.
More efforts need to be made to ensure that all persons with disabilities enjoy an
adequate standard of living. Existing social protection schemes and benefits, including the
eligibility criteria and assessment of beneficiaries, should be reviewed in line with a human
rights-based approach to disability. In addition, the different benefit packages need to take
into account principles of universality, coherence and coordination if they are to be
accessed on an equal basis by all persons throughout the country.
G.
Living independently in the community
60.
The Special Rapporteur is highly concerned about the lack of comprehensive
responses to guarantee the right of persons with disabilities, particularly those with high
support needs, to live independently in the community. Legislation, services and
programmes on the provision of access to in-home, residential and community support
services vary across provinces and territories. While some provincial and territorial
governments are taking steps to improve community support, generally, access to support is
not considered as a right but rather as a social assistance programme dependent on the
availability of funding. Information received by the Special Rapporteur from across Canada
echoed a common concern about the lack of adequate services and support to live in the
community, resulting in increased use of residential institutions.
61.
Statistics Canada estimates that, in stark contrast with the process of
deinstitutionalization conducted decades ago, half a million persons with disabilities with
long-term support needs and health-related conditions, including older persons with
disabilities, reside in nursing homes, group homes and other specialized long-term
facilities.20 It is also estimated that persons waiting to be placed in a residential care facility
occupy 15 per cent of all “acute-care hospital beds” in Canada.
62.
The government of Nova Scotia is investing three times the amount of financial
resources in delivering community services for independent living compared to institutional
care. Programme funding is provided directly to participants or through non-profit
organizations contracted to provide support services for persons with disabilities. The
Disability Support Program determines eligibility and maintains waiting lists. While some
of these programmes have shown the potential to transform service provision, the overall
impact is limited. Consequently, more than 900 persons with disabilities in Nova Scotia
live in institutions.
63.
A similar concern relates to the lack of community services for persons with
disabilities and their placement in medical institutions and other residential settings in
Quebec. In 2017, more than half of persons with disabilities in Quebec reported having
“unmet support needs”. Many had to wait for long periods before they could access at least
some services. Some 3,700 adults under 65 with disabilities were forced to live in hospitals
and nursing homes due to a lack of community-based support services. It is estimated that
the provincial government spends 42,000 Canadian dollars each year to keep a person in an
institutional setting. According to persons with disabilities, the same amount of money
provided in the form of direct funding would allow them to pay for 50–60 hours of personal
assistance services per week.
64.
The government of Ontario supports Direct Funding, a programme for self-managed
attendant care services that is administered by the Centre for Independent Living in Toronto
and that enables adults with physical disabilities to become employers of their own personal
assistants (attendants), determining how and when services are provided. Demand for the
programme is strong but, due to the limited resources, many people have been waiting for
years to access it. Currently, applicants can expect to wait approximately one year before
they are invited for an interview. Meanwhile, although large institutions for persons with
20
12
See www12.statcan.gc.ca/census-recensement/2016/dp-pd/dt-td/Rpeng.cfm?LANG=E&APATH=3&DETAIL=0&DIM=0&FL=A&FREE=0&GC=0&GID=0&GK=0&
GRP=1&PID=109538&PRID=10&PTYPE=109445&S=0&SHOWALL=0&SUB=0&Temporal=201
6&THEME=116&VID=0&VNAMEE=&VNAMEF=.
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