A/HRC/35/38
states, MORHAN and members of the International Federation of Anti-Leprosy
Associations (ILEP) had created partnerships with the Ministry of Justice to not only
review individual cases of violation of rights of persons affected by leprosy, but also to
ensure that public policies and laws relating to Hansen’s disease were upheld by the
Government.24
D.
Economic, social and cultural rights
36.
Most of the responses indicated that the enjoyment of economic, social and cultural
rights by all citizens, including persons affected by leprosy and their family members, was
provided for in the respective Constitutions, as well as in policies, guidelines and laws of
some countries. However, many NGOs indicated that several core human rights were
violated in practice. They cited specific cases of violations of the economic, social and
cultural rights of persons affected by leprosy, such as the right to marriage and to found a
family; the right to education; the right to work; the right to access public services; the right
to adequate health care; and the right to participate in political, social and cultural life
owing to the prevalent and institutionalized stigma and discrimination that existed in
different sectors of society.
37.
With regard to the right to found a family in Nepal, examples were given of two
women who were forced to leave their homes and families after being diagnosed with
leprosy.25 One respondent from Nepal stated that he was forced to sign a divorce paper
within four months of his marriage.26 Several responses from other NGOs indicated that
marriage and family break-ups occurred when either spouse, but particularly the woman,
was diagnosed with leprosy.27
38.
Discrimination at school, particularly against children whose parents have had
leprosy was also cited as a problem by several NGOs. 28 In China, for example, a primary
school had refused to accept 30 children, although they had provided medical certificates.
The parents of some of those children were also against their enrolment because their own
parents or grandparents had been affected by leprosy, but mainly because of fear of
discrimination.29 In India, a nursing student was recently discriminated against at college
when she showed early symptoms of leprosy. 30 Some NGOs cited dismissal of workers on
the grounds of having had leprosy. 31
39.
In the Democratic Republic of the Congo, persons affected by leprosy did not have
the right to marry because it was believed that leprosy was transmissible and a curse from
God. Moreover, persons affected by leprosy were not allowed to bathe in the same water as
other healthy people and were considered an economic burden on their family because
leprosy was considered to be an incurable disease. 32
40.
In India, persons affected by leprosy were still discriminated against in the health
sector. Two cases were cited of hospitals in Delhi denying admission to persons affected by
leprosy, which had led to the death of the patient in one case. 33 A case of rejection and
mistreatment by a hospital of a person affected by leprosy was also mentioned in
Indonesia.34
24
25
26
27
28
29
30
31
32
33
34
Responses from Netherlands Leprosy Relief-Brazil and MORHAN (Brazil).
Response from The Leprosy Mission-Nepal.
Response from Amar B. Timalsina (IDEA-Nepal).
Responses from IDEA-India, FAIRMED Foundation (Sri Lanka) and The Leprosy Mission-Niger.
Responses from The Leprosy Mission-Nepal, MORHAN (Brazil), The Leprosy Mission-Niger,
GPDL (Indonesia), IDEA-India, HANDA (China) and CORSOHANSEN (Colombia).
Response from HANDA (China).
Response from IDEA-India.
Responses from Netherlands Leprosy Relief-Brazil, FAIRMED Foundation (Sri Lanka), The Leprosy
Mission-Nepal, IDEA-Nepal and The Leprosy Mission-Niger.
Response from FOKAD (Democratic Republic of the Congo).
Response from The Leprosy Mission Trust (India).
Response from GPDL (Indonesia).
9
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