A/HRC/35/38
obstacle to the reintegration into society of persons affected by leprosy and their family
members.
G.
Follow-up and monitoring the implementation of the principles and
guidelines
1.
At the national level
57.
All the responses indicated that no country had a national committee to coordinate
activities relating to persons affected by leprosy and no country had formulated a
comprehensive set of policies and measures in the form of national action plans, as
recommended by the principles and guidelines, as a basis for following up their
implementation. However, some respondents noted that, despite the absence of a specific
national action plan or committee established at the national level, policies and laws had
been adopted in their respective countries and, if fully implemented, they would be
equivalent to partial or meaningful implementation of the principles and guidelines. 56
58.
Almost all of the responses from associations of persons affected by leprosy and
NGOs working with them as well as some of national human rights institutions underlined
the need for Governments to develop specific measures to implement the principles and
guidelines, in particular in the form of a time-bound national action plan, and to designate
broad-based stakeholder committees from the national to the community level. 57 That could
then form the basis for follow-up and reporting to a designated government body on the
steps taken towards the implementation of the principles and guidelines. The responses
received also underlined that persons affected by leprosy and their family members, either
as individuals or through their associations or NGOs and civil society organizations
working closely with them, should be actively involved and consulted at all levels and
stages of the decision-making process in order for the Government and other stakeholders
to adequately address the prevalent stigma and discrimination that persons affected by
leprosy and their family members faced and to follow up and report on the implementation
of the principles and guidelines.
59.
Most of the responses also indicated that there should be a designated body within
the Government to coordinate the national action plan for the implementation of the
principles and guidelines and highlighted Ministries of Health and national human rights
institutions, in particular, in their respective countries that were already engaged or should
be engaged directly or indirectly in promoting the human rights of and combating stigma
and discrimination against persons affected by leprosy and their family members.
60.
Many of the responses mentioned some of the priority measures that their respective
Governments should take towards implementing the principles and guidelines, including
promoting awareness-raising and dissemination of the principles and guidelines, repealing
discriminatory laws, promoting social integration and rehabilitation of persons affected by
leprosy and their family members, using appropriate and dignified language and
empowering persons affected by leprosy and their family members.
(a)
Promoting awareness-raising and dissemination of the principles and guidelines
61.
Governments should strengthen their efforts to raise awareness about leprosy and
widely disseminate the principles and guidelines throughout their respective countries,
including providing information about the disease, treatment, discrimination and stigma
faced by persons affected by leprosy and their family members, with their active
participation and in collaboration with stakeholders within the Government and within
society, such as religious leaders, human rights bodies, the media, opinion makers, among
others. In that regard, the principles and guidelines should be mainstreamed in school
curricula and the media should be co-opted to play an active role in eliminating
discriminatory attitudes towards persons affected by leprosy and their family members and
to give wider coverage to advocacy programmes.
56
57
Responses from Japan, Rwanda and Viet Nam.
Responses from Egypt, Rwanda and the United Republic of Tanzania.
13
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