A/HRC/35/38
issue. Mainstreaming leprosy in school curricula and providing information in the
media about advances in the treatment of leprosy and that fact that leprosy is not
easily transmissible nor infectious once treated is also important.
75.
States should review and identify national policies, laws and practices that may
engender stigma and discrimination against persons affected by leprosy and their
family members and amend or repeal such discriminatory policies and laws. States
should also consider developing policies and laws that prohibit any acts aimed at
discriminating against or isolating or excluding persons affected by leprosy and their
family members, in line with the principles and guidelines.
76.
States should designate an appropriate body and establish a national committee
comprising all relevant stakeholders, including persons affected by leprosy and their
family members, to follow up and monitor the implementation of the principles and
guidelines. An existing institution such as the national human rights institution, whose
mandate is principally to ensure the promotion and protection of human rights of all
persons within its jurisdiction, or the Ministry of Health that conducts the national
leprosy programme may be considered as viable options to coordinate, follow up and
monitor the actions and measures taken by government entities at all levels.
77.
States should ensure and support the full and meaningful participation of
persons affected by leprosy and their family members, including women, children and
other vulnerable groups, at all levels of the decision-making process on matters that
have a direct or indirect impact on all aspects of their lives. That would send a
powerful message that their human dignity and rights are recognized on an equal
basis with others and would contribute to eliminating the social stigma attached to
leprosy. The slogan “Nothing for us, without us” should be respected by all States
concerned.
78.
States should ensure that appropriate and respectful language is used by all
segments of society to refer to persons affected by leprosy, or Hansen’s disease, and
their family members. In particular, the use of the term “leper” or its equivalent in
other languages should be avoided at all costs, as it connotes marginalization and
rejection by society and also discourages those affected from seeking treatment in a
timely manner.
B.
At the international level
79.
Discrimination against persons affected by leprosy and their family members
continues to exist in various forms in many countries. The principles and guidelines
for the elimination of discrimination against persons affected by leprosy confirm and
build upon the core principle of non-discrimination enshrined in international human
rights law and constitute a benchmark for upholding the human rights of persons
affected by leprosy and their family members. They represent the standard to be
upheld by States in assuming their responsibility to prohibit all forms of
discrimination against persons affected by leprosy and their family members. The
centrality of the principles of equality and non-discrimination in international human
rights law and the adoption of the principles and guidelines by the United Nations
human rights machinery and the General Assembly make them authoritative
standards against which to measure States’ responsibility towards persons affected by
leprosy and their family members.
80.
Owing to the multiple forms of discrimination and violation of the human
rights of persons affected by leprosy and their family members and in order to
address their specific needs in terms of access to health care, education, employment
and reintegration and rehabilitation into society in a holistic manner, it is
recommended that a specific mechanism be established within the United Nations
human rights system to address the issue and to encourage States and other relevant
actors to implement the principles and guidelines. The mechanism should also be
mandated to follow up, monitor and report on measures taken and progress made by
States towards the effective implementation of the principles and guidelines.
81.
Although existing special procedures address many aspects of the human rights
of various groups, none addresses the human rights issues concerning persons affected
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