A/HRC/43/41/Add.3
makes it difficult to inform, design and monitor adequate rights-based policies and
responses for the diversity of persons with disabilities.
22.
To address these challenges, in 2015 the Directorate launched an online tool to
systematize available administrative data on persons with disabilities and give a better
overview of their situation to governmental bodies and local administrations. Statistics
Norway and the Directorate are also developing new statistics on persons with disabilities,
to be published annually from 2020 onwards, using an innovative methodology which
combines sociodemographic data with administrative information collected from different
official registries on health expenditure, services and benefits received, disaggregated by
type of impairment. The Special Rapporteur looks forward to learning more about this
methodology, which could help other countries to gather more accurate data on the
situation and living conditions of persons with disabilities.
B.
Inequalities in access to rights and services
23.
The Special Rapporteur noted significant disparities in access to social protection,
user-controlled personal assistance, employment and education, depending on where a
person with disabilities lived. As the availability and quality of services varies considerably
from one municipality to another, persons with disabilities often have no other option than
to leave their communities to gain better access to their rights elsewhere, sometimes very
far away from their families and environment. There is an urgent need to enhance and
guarantee effective and coordinated implementation of the rights of persons with
disabilities in all counties and municipalities across Norway.
24.
In that regard, the Special Rapporteur welcomes the Local Government Act of 2018,
which requires municipalities and county authorities to establish councils for persons with
disabilities as advisory bodies that could help identify the gaps and challenges in protection
that persons with disabilities may face. However, she heard from members of such councils
and other interlocutors that the councils are not yet operating properly and the authorities
often neither take their recommendations into account nor allocate the necessary funding to
enable them to function effectively.
25.
The situation of indigenous Sámi with disabilities is particularly worrying, as they
do not have access to the same services and opportunities in their own languages or within
their own culture. Sámi with disabilities often have to choose between gaining access to the
necessary health and other services they need by moving elsewhere, or maintaining their
languages and culture but without access to such services. In practice, many feel they have
no other option than moving to areas where few or no other Sámi live, where access to
Sámi languages in schools and contact with Sámi social circles and family are very limited,
in order to have better prospects of life. Sámi with disabilities, especially women and those
with intellectual disabilities, are also particularly vulnerable to bullying, hate speech,
violence and abuse.7
C.
Accessibility
1.
Accessibility to the physical environment
26.
The State places accessibility and universal design high on its agenda as a means of
eliminating existing obstacles and barriers in the physical environment. Policy in this area
is governed primarily by the Equality and Anti-Discrimination Act, the Planning and
Building Act and related technical regulations. The latter require that all new public and
private buildings open to the public, including workplaces, have universal design. This
requirement also applies to existing buildings that undergo renovation. Since 2003, the
Government has adopted three consecutive action plans for universal design and increased
accessibility, and a new plan of action for the period 2020–2025 was being finalized at the
time of the visit. As the planning authorities and service providers, municipalities are the
7
6
See www.samedigge.no/Politihkka2/Saker-og-dokumenter (in Norwegian).
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