A/HRC/45/14
are excluded from administrative records, such as undocumented older migrants, refugees
and displaced persons.
40.
The lack of a uniform approach and a uniform understanding of old age, and of
standardized concepts and questions, variables and age groups, means that existing data is
neither consistent nor comparable within and among countries.17
C.
Data revolution
41.
New technologies are leading to an exponential increase of the data available in
terms of volume, level of detail, and speed. This data revolution creates unprecedented
possibilities for addressing the data gap on older persons, through the integration and the
broadening of the scope of data, by incorporating non-traditional sources that have so far
not been utilized in official statistics.18
42.
Much of the new data is collected passively, from the digital footprints people leave
behind, or from sensor-enabled objects, or is inferred via algorithms. The risk of
overlooking digitally invisible older persons constitutes an important challenge. The
adoption rate among older persons of “smart” digital technology and of online social
networks is significantly lower than the average in the population, and digital footprints
may therefore not be representative of older persons and in particular of the oldest old.
Barriers to the digital inclusion of older persons include low digital literacy, and
connectivity differentials, as well as uneven power relations within households that may
deny older persons access to digital devices, but also hearing, visual and cognitive
impairments, and mental conditions, such as dementia. Any decision-making based on such
data is likely to overlook the more vulnerable members of the age groups. There is a risk,
furthermore, of algorithms reproducing the underlying lack of understanding of ageing and
human bias vis-à-vis older persons.19
43.
Data gathered through the use by older persons of assistive and smart ageing
technology is particularly sensitive. It links personal and physiological or health data with
data on behavioural patterns and with environmental data, such as air humidity and
temperature, to enable an all-round analysis and continuous monitoring, in order to design
tailored services, including more precise predictability of health conditions and care needs
of older persons. While the objective is to enable older persons to lead autonomous and
independent lives for longer, there are significant concerns about data protection and
privacy. Data that relates sensitive personal information, including health status, should be
handled only with the express consent of the older person concerned.20 As devices become
more autonomous, data collection will further expand, since these systems function on the
basis of data collection and analysis, and such concerns will be magnified.
44.
Data generated passively and comprehensively, including, in particular, behavioural
data, allows a categorization of older persons into those who are autonomous, those who
are semi-autonomous and those who are dependent, and makes it possible to make
individualized predictions of their needs, and prescriptions to address them. Respect for
17
18
19
20
10
Economic Commission for Europe, Recommendations on Ageing-related Statistics, prepared by the
Task Force on Ageing-related Statistics (United Nations publication, 2016).
See the report of the High-level Panel of Eminent Persons on the Post-2015 Development Agenda,
available at www.post2020hlp.org/wp-content/uploads/docs/UN-Report.pdf.
Mario Callegaro and Yongwei Yang, “The role of surveys in the era of ‘big data’”, The Palgrave
Handbook of Survey Research (2017), pp. 175–192; Robin Allen and Dee Masters, “Artificial
intelligence: the right to protection from discrimination caused by algorithms, machine learning and
automated decision-making”, published online on 2 October 2019, pp. 1–14; and Anthony Flores et
al., “False positives, false negatives, and false analyses: a rejoinder to ‘Machine bias: there’s software
used across the country to predict future criminals. and it’s biased against blacks’”, Federal Probation
Journal, vol. 80, No. 2 (2016), pp. 38–46.
OHCHR, “A human rights-based approach to data: leaving no one behind in the 2030 Agenda for
Sustainable Development” (2018), p. 17.
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