A/HRC/45/14
they are more aware of the lived experiences of older persons. It is also important to
develop targeted training for civil society, and older advocates, on various aspects of
data collection and handling, thereby increasing data literacy.
90.
There is a need to develop statistical guidance to improve data collection,
analysis and use. In this context, specific guidance is required on methodology, such as
the identification of older survey participants and the conducting of qualitative and
quantitative interviews, particularly with older persons living in institutional settings,
care recipients and the oldest old. Training programmes on age-sensitive interviewing,
including the basics of gerontology and geriatrics, are essential for ensuring a
biopsychosocial cultural approach to ageing.65
91.
It is imperative that older persons receive clear and adequate information
about the purposes of studies, in order to ensure the actual exercise of meaningful,
free and informed consent as regards the collection and use of their data. They need to
have the possibility of changing their mind or opting out at any stage of the datacollection process. Collected data must exclusively be used for the purpose that older
persons have consented to, with full respect for the principle of data minimization and
for human rights standards. There is a need for robust data protection in view of the
challenges related to privacy, individual data sovereignty and informational selfdetermination, including those arising from the increasing passive collection of data.
92.
With reference to the Data Strategy of the Secretary-General for Action by
Everyone, Everywhere, with Insight, Impact and Integrity, the ongoing data
revolution offers a unique opportunity to overcome current data gaps on older
persons and to unleash the full strength of data, provided that it is underpinned by a
human rights-based approach. It has the potential to induce a data-driven
transformation towards a more inclusive, equitable and age-friendly society, anchored
in human rights.66
65
66
A/HRC/39/50/Add.1, para. 119.
Strategy for 2020–2022.
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