A/HRC/31/63
sufficient knowledge remains a significant barrier to tackling discrimination, stigmatization
and violence.15
33.
Discrimination, stigma and bullying of persons with albinism owing to their
appearance have been reported in all regions of the world, to varying degrees. Such
discrimination has been described as discrimination based on skin tone or shade, including
within the same ethnic group. While discrimination based on skin colour is an everyday
reality for most persons with albinism, discourse on discrimination based on colour has
rarely been applied to albinism. This is for various reasons such as the lack of visibility of
albinism, until very recently, the lack of understanding of what persons with albinism
experience and lastly, but perhaps most significantly, strong historical ties of racial
discrimination discourse to race or ethnicity. Yet, there is potential to address albinism
under the International Convention on the Elimination of All Forms of Racial
Discrimination, as the governing concept is not “race” but “racial discrimination”, which
may be based on any of five “grounds”: race, colour, descent, national origin and ethnic
origin.16
C.
Disability
34.
The term “persons with disabilities” under the Convention on the Rights of Persons
with Disabilities has a broad scope and includes any person with a long-term physical,
mental, intellectual or sensory impairment, which, in interaction with various barriers, may
hinder his or her full and effective participation in society on an equal basis with others.
35.
Lack of melanin in the eyes results in high sensitivity to bright light and significant
vision impairment, with the level of severity varying from one person to another. This vision
impairment often cannot be completely corrected. In some countries, this has led to the
categorization of persons with albinism as legally blind, which enables them to access the
national legal frameworks in the field of the rights of persons with disabilities, including
measures related to access to health and education.
36.
Legal frameworks for the enjoyment of human rights by persons with disabilities,
including the Convention, could address issues faced by persons with albinism on the basis
of their vision impairment. The Convention in particular identifies areas where adaptations
have to be made so that persons with disabilities can fully enjoy their human rights,
including access to education, employment, information and health care. Furthermore, the
Convention has established as principles respect for inherent dignity, equality of
opportunity, full and effective participation and inclusion in society and non-discrimination.
On that basis, urgent measures could be implemented to address pressing issues relating to
the visual impairment of persons with albinism. However, those measures would need to be
combined with other measures designed to address other forms of discrimination faced by
persons with albinism as well as to address attacks and to ensure access to health care.
D.
Health
37.
One of the most serious health implications of albinism is the vulnerability to skin
cancer. Skin cancer remains a life-threatening condition for most persons with albinism.
Statistics on the issue are mostly from Africa and they indicate a worrying trend. Some
15
16
10
See A/HRC/28/75, para. 43.
See OHCHR and International Organization of la Francophonie, “Expert meeting on persons with
albinism: violence, discrimination and way forward”, outcome report, 24 September 2014, para. 33.
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