A/HRC/31/63
Advisory Committee in its study on the situation of human rights of persons living with
albinism, an assessment by the OHCHR field presence of the situation of displaced persons
with albinism in Burundi showed the precarious security situation of some of them and the
negative impact of the measure on the right to an adequate standard of living. 14
28.
According to information received, the erroneous beliefs and myths, including
certain witchcraft practices, have led to the desecration of graves of persons with albinism.
Such desecrations have been reported in at least seven countries in Africa. In the cases
reported, graves of persons with albinism were open and body parts or bones were stolen.
B.
Discrimination
29.
One of the main barriers to the implementation of the human rights of persons with
albinism is discrimination and stigmatization, both of which are historically and culturally
entrenched. Information on discrimination against persons with albinism has been received
from around the world. However, the expression and severity of the discrimination faced by
persons with albinism vary from region to region.
30.
In so-called Western countries, persons with albinism face the effects of entrenched
misconceptions and misunderstandings of the condition. Discrimination through mockery or
bullying of school-age children owing to their appearance has been reported. Given the
relative rarity of albinism, popular culture, such as movies (a majority of which depict
albinism negatively), are often the sole source of information on the condition for the
majority of the population, fuelling widespread misconceptions and misunderstanding of the
condition.
31.
Bullying of school-age children owing to their appearance has also been reported in
other regions of the world, such as in sub-Saharan Africa. However, in that region,
discrimination takes more extreme forms, including infanticide, physical threats and attacks.
Lack of information on the condition facilitates the spread of myths to explain albinism,
most of which are erroneous and in some cases dangerous, including myths that people with
albinism are ghosts or the result of conception during menstruation or the result of a general
curse. Life in that context could be described as a cycle of discrimination. Civil society has
reported that ostracism of entire families owing to the strong negative connotation of the
birth of a child with albinism, perceived as a source of misfortune in certain regions,
contributes to infanticide and abandonment of children. Where there are no systematic birth
and death records, identification and reporting of such cases are even more difficult. In some
regions, children with albinism drop out of school for reasons linked to stigma and because
no reasonable accommodation is made for the vision impairment often resulting from
albinism. A lack of education combined with widespread absence of health information
often lead persons with albinism to employment outdoors with no protection from the sun,
which exposes them to a high risk of skin cancer.
32.
In the Pacific Islands, it has been reported that people with albinism suffer
comparable human rights-related issues with regard to lack of access to information and
support for health conditions, vision problems and cultural isolation. There is little verified
information on the human rights situation of persons with albinism in Asia, South America
and the Caribbean. The Human Rights Council Advisory Committee stressed that the
absence of information on albinism in other regions should not be interpreted to mean that
there is no problem of discrimination, stigmatization and violence in those regions. Lack of
14
See A/HRC/28/75, para. 24.
9
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