A/HRC/44/46/Add.2 groups are in need of targeted interventions aimed at empowerment, capacitybuilding and generation of safety nets. Such strategies require improved data collection with disaggregation of socioeconomic and demographic variables. The data cannot be put forward by a single institutional body, such as the Ministry of Health, but demand an intersectoral approach and interministerial coordination. 77. Discrepancies were found with regard to the status of the approximately 30 former Hansen’s disease colonies. Some of the former colonies have developed outstanding best practices in the fields of research, care, assistance, land regulation and preservation of history, while others, especially on the peripheries of the administrative centres, suffer from alarming institutional neglect. Pending issues, such as the situation of individuals who were placed in confinement institutions as children on the grounds that their parents were affected by Hansen’s disease, demand urgent action to put in place a complex reparation programme based upon symbolic and material reparation, memorialization and guarantees of non-recurrence. 78. The registration and replication of the good and best practices that are already in place are highly recommended, not only in order to implement at the national level a rights-based policy to address barriers to full inclusion related to Hansen’s disease, but also to scale it up to the field of international cooperation. B. Recommendations General 79. The Special Rapporteur recommends that the Government: (a) Make every effort to redress persistent substantive discrimination, both in the social determinants of Hansen’s disease and the root causes of systemic discrimination. Efforts should simultaneously target socioeconomic disadvantage through redistributive measures that ensure a minimum standard of living, and stigma reduction strategies, through permanent awareness-raising programmes that should include non-scientific knowledge, involve persons affected by Hansen’s disease and be sensitive to local languages, gender, age and disability. Efforts should also include guarantees for the autonomous development and independent living of persons affected by Hansen’s disease and their family members, with special measures in the fields of education and vocational training, decent work and social protection. Such efforts require multisectoral governance and interministerial cooperation; (b) Ensure that the health system is capable of guaranteeing for all persons affected by Hansen’s disease and their family members in all regions of the country: availability of good quality health services; accessibility without discrimination; physical and economic accessibility; accessibility of health information; active and informed participation of individuals and groups of persons affected by Hansen’s disease in health services as peer health promoters and peer counsellors, and in decision-making about health policies and programmes; monitoring and accountability mechanisms on the performance at all levels of the administration of effective, transparent and accessible health programmes designed to ensure early diagnosis of Hansen’s disease, prevention of impairments and sustainable reduction of new cases among children; and education of the health workforce on the rights of persons affected by Hansen’s disease and their family members; (c) Enforce access to justice and human rights literacy for this group, which struggles with financial, physical and knowledge restrictions in this regard, and ensure equitable access to local legal aid, accompanied by training of public defenders and judicial staff on issues related to Hansen’s disease. Ensure the safety and accessibility of courts, quasi-judicial bodies and other bodies, providing nondiscriminatory and timely responses based on adequate and effective remedies. Provide for systematic recording of discrimination to support research and analysis of risk factors, with easy-to-access mechanisms for making complaints of discrimination. Provide capacity-building on core human rights and rights provided for in the Brazilian legal system to persons affected by Hansen’s disease and their families; 17